Meet Jadyn!

This interview was conducted in Fall 2011 by Isaac Kruger, PHA Pathlight Volunteer.

Jadyn with her horse FireJadyn with her horse Fire

Where do you live?
I live in Naperville, Ill.

How old are you?
I'm 12 years old. My birthday is August 17.

When were you diagnosed?
I was diagnosed two and a half years ago.

When did you first start having PH symptoms?
I started having symptoms when I was in second grade.

What were your symptoms?
My main symptoms were fatigue, shortness of breath and passing out.

What are your favorite activities to do?
My favorite activities are horseback riding, crafts and softball.

Have you ever felt unable to do something because of PH?
Yes, I cannot always participate in P.E. or running activities.

How has your life changed since you were diagnosed with PH?
It hasn't changed too much. I have to take pills four times a day and go to lots of doctor appointments now.

What message would you like to pass on to other kids with PH?
There have been some hard times, but I am doing really well! You just learn to live with the changes ... and I am blessed!

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.