November 30, 2011

       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post


PH Conference in Spain

The Lantos Grants: Now It's YOUR Turn...

Our advances at PHA have always come as we have learned from each other. PHA's annual Tom Lantos Innovation in Community Service Awards are a great example of that truth. Up to 10 creative ideas will be funded in 2012 with funding of up to $5,000 for each, thanks to an annual grant from Gilead. » Read more

What's In This Issue


» Spotlight On... Congressional Luncheon
» Get Smart
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...


Jeannette Morrill met with her Congressman, Mike Michaud (D-ME), during PHA’s Congressional Luncheon and Advocacy Day.

Congressional Luncheon Builds Awareness, Legislative Support

"I have been to the very rock bottom with this disease... I have been fortunate enough to know the other side as well, the side that gives hope to continue the battle against PH," Jeannette Morrill shared her story at PHA's annual luncheon in Washington, D.C. » Read more about the luncheon
Get Smart


Update in PH Symposium in Cambridge, Mass.

Friday, Dec. 2, Cambridge, Mass.
PHA is partnering with Tufts University School of Medicine and Tufts Medical Center which is presenting the 9th Annual Update in Pulmonary Hypertension Symposium. Part of the Building Medical Education in PH (BME) program, this all-day PH education event is open to medical professionals and patients. CME credits are available. » Learn more 

PH Community Scoop


Dallas Funwalk 2011

North Texas Fun Walk/5k Run Raises Hope and Funds for PHA

On Saturday, Nov. 12, more than 100 patients, caregivers and supporters turned out at Mike Lewis Park in Grand Prairie, Texas, for the North Texas Fun Walk/5k Fun Run. They raised close to $10,000 for PHA and we want to thank the dedicated special events coordinators who organized this event during Awareness Month. » Read more

Look for more Awareness Month event news in the Dec. 14 edition of PHANews.

    PHA flame image

Virtual Candlelight Vigil

Wednesday, Dec. 7, 6:30 p.m. ET/3:30 p.m. PT
The holidays can be very challenging for those who have experienced the loss of a loved one. Join us for a virtual candlelight vigil to reflect, share and discuss coping mechanisms to process grief and loss of a loved one due to pulmonary hypertension. » Register now

If you need assistance with registration, please contact Chanda Causer at 301-565-3004 x777.

From the PHA News Desk
   

PH Community Proclaims November PH Awareness Month

States, cities, counties and local governments are much more aware of pulmonary hypertension thanks to proclamation requests from veteran advocates and Awareness Month first-timers. Requests for local governments to recognize November as PH Awareness Month got a boost this year thanks to Doug Taylor's proclamation challenge. » Read more

   

Move PHA towards a Brighter Future

Today, your support helps more than ever. We have ambitious plans for 2012, including our 10th International PH Conference and Scientific Sessions, a national campaign to increase public awareness of PH, expanding much-needed medical and patient education, and continuing to raise funds for ongoing PH research and The Robyn Barst Pediatric Research Fund. Learn more | Donate now
  Medical Community Bulletin


Call for Abstracts for Conference

Submission Deadline: March 15, 2012
Submit your abstract for the poster session at PHA's 10th International Pulmonary Hypertension Conference and Scientific Sessions in the areas of clinical science (including treatment), basic science, and case studies. Four abstracts will be selected for oral presentation and an award will be given to the top two abstracts. » Learn more

   

Request for Proposal: Studies of the Right Ventricular Response to Therapy in Patients with PAH 

Submission Deadline: July 1, 2012
The Cardiovascular Medical Research and Education Fund is seeking proposals from qualified academic medical centers with the ability to coordinate and conduct a clinical study evaluating right ventricular function in patients with pulmonary arterial hypertension, its adaptive and maladaptive responses, and the effects of therapy. » Learn more
Also of Interest


Last Call: Medicare Open Enrollment Closes Dec. 7

Medicare's Fall Open Enrollment closes next Wednesday, Dec. 7. It's not too late to change your Medicare health and drug coverage options without restriction or penalty. » Learn more

PH News Headlines


» Heart Rate Recovery After 6MW Test is a Strong Predictor of Clinical Worsening in IPAH Patients

» Guest Viewpoint: Ask Doctor If You Have Symptoms of Pulmonary Hypertension

» PH Awareness Month Event Draws Attention to Misdiagnosis

» Couple Spurs Support for Pulmonary Hypertension Patients

» More News

Connect with PHA

Facebook Twitter YouTube

Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Dec. 2, 2011
Update in PH Symposium
Cambridge, Mass.

Dec. 10, 2011
7th Annual Fun Walk for PH
Uniondale, N.Y.


» Go to the Events Calendar

Video Spotlight

Paul Adams composed and produced "Let Me Breathe" on behalf of the Pulmonary Hypertension Association of Canada, Toronto Chapter.

Paul Adams composed and produced "Let Me Breathe" on behalf of the Pulmonary Hypertension Association of Canada, Toronto Chapter. Watch the video and forward it to your friends!

Read this week's Generation Hope blog post "Apply for a 2012 Lantos Award!"

Support PHA through the Combined Federal Campaign

Web of Friends



Need more information? Contact PHANews@PHAssociation.org
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

Privacy Policy | Unsubscribe/Email Preferences

Copyright © 2011 Pulmonary Hypertension Association.
All Rights Reserved.


 

Not already subscribed? Sign up for PHANews

FacebookGoogle +TwitterLinkedInPinterestInstagramYouTubeBloggerFeedsPHAware Download our App

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy   Virtual Tour of Website    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.® | © 2014 Pulmonary Hypertension Association. All Rights Reserved.

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.