Friday, June 17
The Skill-Building Workshops are staff- and volunteer-led informational sessions designed to help attendees enhance or learn new skills to use in the fight for our shared cause.
Fundraising 101: Create your own event!
Thinking about taking on a bigger role in your PH community involvement? PHA fundraisers are a great way to help support research, drive patient programs and increase public understanding of PH, while allowing others the opportunity to support you and the entire PH community. In this session, learn about the various ways to create your own fundraising special event. Panelists will share their own experiences and tips on being a first-time event organizer to help you get started.
Fundraising 201: Take your event to the next level!
Looking for ways to kick it up a notch at your next PH community event? This session will offer examples and ideas of how to maximize the success of your fundraising event year over year. Community events are a great way to raise awareness and funds in the fight against PH. There are many resources available to help you increase participation, sponsorship, media coverage, excitement and much more. Hear from the experts, a panel of PH event organizers, about their event experiences and how they work with PHA to keep their events growing.
The most effective media coverage about PH includes personal stories — your stories. Hear from the experts, media professionals and PHers like you, about the advantages of raising awareness through the media and how you can embrace them.
Yes We Can!: Turning Elected Officials into PH Advocates
Does your Member of Congress have the #Heart2CurePH? Learn how to turn your elected officials into PH allies during this interactive workshop. You will hear from PHA’s Washington Representative with an update on the PH bill and other legislative priorities. Then you’ll learn how PHA can support you in small and large advocacy efforts. You can make a difference by sharing their story with Members of Congress.
Networking: Connecting at Conference, Online and In Your Own Backyard
How do I connect meaningfully with others during Conference? When I go back home, how can I find more patients or caregivers like me? Where are good places to find others with PH online or in my home town? This community-led "skills building" session will help you maximize your time at Conference to connect with patients or caregivers who can help you in your journey with PH. We will also help you find ways to connect online and in-person, at support groups. We will also share tips on starting a support group in your area, too!