The Skill-Building Workshops are staff- and volunteer-led informational seminars designed to help attendees enhance or learn new skills to use in the fight for our shared cause. These sessions will take place on Friday, June 20.
*All speakers, topics and meeting groups are subject to change.
Fighting Back Through Fundraising – Navigating the Roadmap
Panelists: Carl Hicks, PHA Executive Vice President; PHA Headquarters & Chapter Fundraising Staff
Thinking about taking your PH community involvement to the next level? PHA fundraisers help support cutting-edge research, drive patient programs and increase public understanding of PH, while allowing others the opportunity to support you and the entire PH community. In this session, learn about the various ways to get involved through individual fundraising pages, participation in endurance events, workplace fundraisers, special events and more! Our fundraising team will share resources, examples, tips and tricks to help you get started.
Panelists: Diane Dauwalder, PH Patient; Elisabeth Williams, PHA Grassroots Campaign Senior Manager
The most effective media coverage about PH includes personal stories – your stories. Hear from the experts, media professionals and PHers like you, about the advantages of raising awareness through the media and how you can embrace them.
PHabulous Projects: From Idea to Reality – Successful Funding and Completion of PH Community Service Projects
Panelists: Ryan Juntti, Previous Lantos Award Winner; Kimberley Lamon-Loperfido, PHA Patient & Caregiver Services Manager; Haley Ann Lynn, Previous Lantos Award Winner; Bonnie Patricelli, Previous Lantos Award Winner
Do you have an idea that will increase public awareness of PH, disseminate education about PH, or create a resource for those impacted by PH? PHA offers the Tom Lantos Innovation in Community Service Awards as one of many mini-grant funding opportunities available to community members. Writing a grant proposal may seem daunting – but in reality it's like following a recipe. You can expect to leave this session with a greater understanding of how to find, fund and implement your PHabulous Project ideas.
Wellness Through Creative Expression
Panelists: Megan Mallory, PHA Director, Publications; Dale Rankin-Mack, PH Patient, Support Group Leader, Active Writer and Artist; Katie Tobias, PH Patient, Special Events Organizer, Active Writer and Artist
Medical studies show that creative expression can improve your physical, mental and emotional well-being, leading to reduced symptoms and improved health. This session will provide you with ideas and inspiration to get your creativity flowing. Explore the creative possibilities with us, and feel free to bring your own writing and artwork to share with the group.