Friday, June 17
Mix and mingle with patients and caregivers of all ages and backgrounds, as well as community leaders who volunteer as members of PHA advisory boards, at the Pre-Conference Meet-ups. By the end of these meet-ups, you will recognize a bunch of friendly faces. By Sunday, you might just count them as lifelong friends!
Look for these specific groups while you enjoy socializing at the Pre-Conference Meet-ups:
*All topics and meeting groups are subject to change.
Newly Diagnosed Patients and First-Time Conference Attendees
Many Conference attendees are new to PH or to PHA. Stop by this gathering of first-timers to meet someone else looking for a friendly face. You can also meet members of the Newly Diagnosed Advisory Board.
Patients with Associated Illnesses
Living with an associated condition? Scleroderma, lupus, CHD, COPD, HHT, liver disease, sleep apnea, sickle cell disease, HIV? Chat with others who understand the complexities of juggling multiple illnesses. You can also meet members of the PH Plus Advisory Board.
Mingle with young-adult patients living with PH aged 18 to 40. You will have the chance to meet members of the Generation Hope Advisory Board.
Men with PH
Get together with fellow men who are living with PH. You can also meet the members of the Men's Advisory Board.
Families of Children and Teens with PH
Children and young people living with PH and their families can play, chat and start making friends before the Kids’ Room opens. This is also your chance to meet members of the Parents (of PH Patients) Advisory Board.
Facebook and PH Online Communities
Stop by to finally meet your online friends from PHA online communities and Facebook in person. Members of the Social Media Advisory Board will be on hand.
Mingle with other patients who have been living with PH for the long haul. Also, join a conversation with members of the Long-Term Survivors Advisory Board.
Connect with other caregivers, family members and friends of adult patients. This is an opportunity to meet the Caregiver Advisory Board.
Meet up with fellow organ transplant recipients, donors and their family members. You can also get to know the members of the PH Transplant Advisory Board.
CTEPH (Chronic Thromboembolic Pulmonary Hypertension) Patients
Get together with your fellow CTEPH patients! Trade experiences with others just like you, whether you’ve had PTE surgery, are exploring alternatives due to not being a surgical candidate, or are living with residual CTEPH. Share your stories, tips, and experiences with others managing this special blood-clot related type of PH and meet the members of the CTEPH Advisory Board, too.