Mix and mingle with patients and caregiver of all ages and backgrounds, as well as community leaders who volunteer as members of PHA advisory boards, at the Pre-Conference Meet-ups taking place in the morning on Friday, June 20. By the end of these meet-ups, you will recognize a bunch of friendly faces. By Sunday, you might just count them as lifelong friends!
Look out for these specific groups while you enjoy socializing at the Pre-Conference Meet-ups.
*All topics and meeting groups are subject to change.
Newly Diagnosed Patients and First-Time Conference Attendees
Many Conference attendees are new to PH or to PHA. Stop by this gathering of first-timers to meet someone else looking for a friendly face. You can also meet members of the Newly Diagnosed Advisory Board.
Patients with Associated Illnesses
Living with an associated condition? Scleroderma, lupus, CHD, COPD, HHT, liver disease, sleep apnea, sickle cell disease, HIV? Chat with others who understand the complexities of juggling multiple illnesses. You can also meet members of the PH Plus Advisory Board.
Mingle with young-adult patients living with PH aged 18 – 40. You will have the chance to meet members of the Generation Hope Advisory Board.
Families of Children and Teens with PH
Children and young people living with PH and their families can play, chat and start making friends before the Kid’s Room opens. This is your chance to meet members of the Parents (of PH Patients) Advisory Board.
Facebook and PH Online Communities
Stop by to finally meet your online friends from PHA online communities and Facebook in-person. Members of the Social Media Advisory Board will be on-hand.
Mingle with other patients who have been living with PH for the long-haul. Also, join a conversation with members of the Long-Term Survivors Advisory Board.
Connect with other caregivers, family members and friends of adult patients. This is an opportunity to meet the Caregiver Advisory Board.