January 25, 2012

       

 

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Affirming the Human Spirit

Affirming the Human Spirit . . .

“Thank you for reminding me why I became a doctor.” The first time I heard those words was in 2002 at PHA’s Fifth International PH Conference in Irvine, California. It was a striking statement from a globally recognized PH physician. I’ve heard similar words since from other medical professionals, and I’ve heard so many stirring words from patients and their families about what Conference means to them . . . » Read more

What's In This Issue
   

» Spotlight On...PHA Plush Naming Contest
» Get Smart
» Website Discoveries
» PH Community Scoop

» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...
    PHA’s Newest “Phriend” Needs a Name!

PHA’s Newest “PHriend” Needs a Name!

Calling kids of all ages! PHA’s new plush will be making his debut in our online store in the upcoming weeks, but we don’t know what to call him. You can help give him a name by submitting your ideas in this online form by Feb. 10. If we select your entry, we will send you a free “PHriend.” » Submit your name idea

Get Smart
    PHA's President, Rino Aldrighetti, will discuss the current state of PHA and the growth of the PH community

State of PHA – An Update from PHA President, Rino Aldrighetti

Monday, Feb. 6, 2 p.m. ET/ 11 a.m. PT
The cause continues to move forward in many directions and 2011 was a year of continuing strength in the fight against PH through research, education, advocacy and awareness. In this webinar, PHA's President, Rino Aldrighetti, will discuss the current state of PHA and the growth of the PH community. » Register now

    Spring Into Special Events

Spring Into Special Events: Webinar Recording Now Online!

The recording of the "Spring Into Action: Planning Your Spring Special Event" webinar is now available in PHA Classroom. The recording takes you through the Who, What, Where, When and Why of PHA's Special Events program, and provides a closer look at web-based tools that can help make your next special event fundraiser a success! » View recording

    Make a Difference in the PH Community Webinar Recording

Make a Difference in the PH Community: Webinar Recording Now Available Online!

If you missed the live e-learning event “How to Apply for a Lantos Community Service Award,” the recording is now available! Learn how to get support for your ideas and how to go through the process of applying for this award. Applications are due Jan. 27! » View recording

Website Discoveries
    PHA Outstanding Member Awards

Things I Found by Kathryn Frix: PHA Outstanding Member Awards

There are only 149 days to Conference! If you are chomping at the bit like I am, I know just what you can do with some of that Conference spirit: nominate someone for a PHA Outstanding Member Award! » Read more

PH Community Scoop
    Fun Walk for a Cure Logo

New Year, New Look!

With the arrival of another year, we thought it was high time to refresh the look of our signature special event logo, the Fun Walk for a Cure. After gathering design feedback from our community of special events volunteers and others, we are pleased to show off the new logo - just in time for those planning to host a spring walk to benefit the PH community! » Learn more

    Support Groups Make New Year’s Resolution

Support Groups Make New Year’s Resolution

Getting more exercise is a very common New Year’s resolution. The Greater Kansas City Support Group addressed exercise and resolutions at its January meeting, “No More Excuses: Exercise for All.” Pulmonary rehabilitation and appropriate exercise for those living with PH was the topic of conversation. » Find a group near you

Medical Community Bulletin
    Apply for Social Security Disability

Live Webinar: How to Help Your PH Patients Successfully Apply for Social Security Disability

Tuesday, Feb. 28, 2 p.m. ET/11 a.m. PT
Thirty percent of Social Security applicants get approved in their initial application, but how many of these applicants are PH patients? Join this webinar to hear tips from a panel of experts on how you can help your patients get approved. Come with questions and suggestions for your colleagues. » Register now

Also of Interest
    TSA Hotline for Air Travelers with Disabilities

TSA Launches New Toll-Free Number for Air Travelers with Disabilities

Questions about airport security policy and procedures? You can now call the Transportation Security Administration’s hotline before you travel for answers to your air-travel questions and to make arrangements for security checkpoint support at the airport. 1-855-787-2227 | Read more

    Feb. 14 is National Organ Donation Day

Pledge to Give the Gift of Life this Valentine’s Day

Feb. 14 is National Organ Donation Day. More than 112,000 Americans, including PH patients, are waiting for life-saving organ transplants. Learn more about organ donation | Learn more about PHA's transplant resources 

    Rare Disease Day

Learn From the FDA How You Can Work for New Treatments

The Food and Drug Administration (FDA) presents its first-ever Patient Advocacy Day on Thursday, March 1. You can learn how new therapies for rare diseases are reviewed and the role that patients can play in the process. This event is planned in conjunction with the 5th Annual Rare Disease Day on Feb. 29» Read more

PH News Headlines
   

» A Review of Inhaled Nitric Oxide in Hypoxic Newborns

» Opera Singer Who is Awaiting Second Double Lung Transplant Inspires Others

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Feb. 17 - 18, 2012
British Columbia Pulmonary Hypertension Society - 11th Annual PH Symposium
Vancouver, British Columbia, Canada

Feb. 18, 2012
Rare Disease Day
Havasu, City, Ariz.

Feb. 18, 2012
Strut Your Stuff Against PH
Wilkes Barre, Pa.


» Go to the Events Calendar

Video Spotlight

Support group leader and patient Doug Taylor appeared on South Carolina’s WIS to talk about pulmonary hypertension.

Support group leader and patient Doug Taylor appeared on South Carolina’s WIS to talk about pulmonary hypertension. » Watch video

Table Talk: Wired ...the inside scoop on Conference. Read and share your Conference stories
Read this week's Generation Hope blog post "Share your PH Video Story"
Members-Only Special: CARD-iology Note Cards 20% off (Now only $12)
 
 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.