February 8, 2012

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Kitchen Table

A 20 Year Anniversary . . .

Earlier today, Amanda Butts was digging into our archives and found information about PHA’s original nonprofit incorporation. What was striking was the date of that incorporation – Feb. 11, 1992 – almost exactly 20 years ago. A lot has happened in two decades . . . » Read more

What's In This Issue

» Spotlight On... New Bill Sponsors
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...
    PH Research and Education Act Gets a Wave of Congressional Support

Wave of Congressional Support for PH Research and Education Act

Six Members of Congress became official co-sponsors of the Tom Lantos PH Research and Education Act last month because PH community members asked them to! Five more are waiting to be added as co-sponsors. » Read more

Get Smart
    Life After Diagnosis: Staying Active with PH

Life After Diagnosis: Staying Active with PH

Thursday, Feb. 16, 12 p.m. ET/ 9 a.m. PT
After diagnosis, many patients experience difficulties adjusting to a changing lifestyle, but patients can still find ways to stay active. Hear from medical professionals and patients about the different ways you can stay active with PH and how to maintain energy to continue doing the things you love. » Register now

    New PHA Classroom Recordings Now Available

New Recordings Now Available!

If you missed the “Maintaining Relationships with Friends and Family After Diagnosis” or the “Newly Diagnosed? What You Need to Know” webinars recently, you’re in luck! Recordings from both webinars are now available in PHA Classroom. » Learn more

    5th International Conference on Neonatal & Childhood Pulmonary Vascular Disease

Conference on Childhood Pulmonary Vascular Disease

March 9 - 10, 2012, San Francisco, Calif.
The University of California, San Francisco, presents the 5th International Conference on Neonatal & Childhood Pulmonary Vascular Disease. Specialists in the field will present on a variety of topics. A series for PH families, where patients and parents will share their personal PH journeys, will also be featured. » Read more and register

Living Better with PH
    Co-Parenting a Child with PH

15 Tips for Co-Parenting a Child with PH

Don’t wait for an emergency to talk to your partner about your child’s PH. Sit down to discuss your child’s needs when there’s not a crisis. You’ll both be able to think more clearly when you’re not reacting to an immediate problem. » Read more tips

PH Community Scoop
    Show Off Your PHA Swag

Show Off Your PHA Swag

A member of our PH community, Kathy Van Osdale-Levitt, has created awareness-raising mugs and bumper stickers to promote PHA. Kathy will donate a percentage of the sales to PHA. Order yours today: PHA Mug | PHA Bumper Sticker

    Caregivers Telephone Support Group

Caregivers Telephone Support Group

Wednesday, Feb. 15, 1:30 p.m. ET/10:30 a.m. PT
Are you a caregiver to a PH patient? Call in toll-free to connect, learn and share strategies and experiences caring for an adult with PH. Calls are held on the third Wednesday of every month. » Learn more

    Parents Telephone Support Group

Parents Telephone Support Group

Thursday, Feb. 16, 8:30 p.m. ET/5:30 p.m. PT
Call in toll-free to share tips and tricks for day-to-day life with a child who has PH. This conversation will be open for one hour, join us for as long as you’d like. » Learn more

From the PHA News Desk
    Conference Roving Reporters Contest

Conference Roving Reporters Contest

Calling all teens! PHA is looking for four reporters ages 13 - 19 who will be attending PHA’s 10th International PH Conference, and are eager to cover and write an article on an assigned Conference topic for Table Talk, the daily Conference newsletter. » Apply now 

    Julie Hendry Memorial Scholarship Award

Non-Patient Volunteers Need Love Too!

If you are a non-patient PHA member who actively supports what we do, you could be eligible for the Julie Hendry Memorial Scholarship Award, worth up to $1,000 to attend the 10th International PH Conference. Julie Paton Hendry was the first full-time non-patient PHA volunteer, and this award is named in her memory. » Submit a nomination 

Medical Community Bulletin
    PHA Online University: New Courses Added!

PHA Online University: New Courses Added!

Four new pediatric courses filmed at the 4th International Childhood and Pulmonary Vascular Disease Conference are now available on PHA Online University. Each course offers free CME credits after completion of a post-test and evaluation. » View courses 

    How to Successfully Apply for Social Security Disability

Live Webinar: How to Help Your PH Patients Successfully Apply for Social Security Disability

Tuesday, Feb. 28, 2 p.m. ET/11 a.m. PT
Thirty percent of Social Security applicants get approved in their initial application, but how many of these applicants are PH patients? Join this webinar to hear tips from a panel of experts on how you can help your patients get approved. Come with questions and suggestions for your colleagues. » Register now

Also of Interest
    Campaign for Disability Employment Announces Video Contest

Campaign for Disability Employment Announces Video Contest

Use your creativity to demonstrate the talent that you bring to America’s workforce and to challenge misconceptions about disability and employment. Enter the Campaign for Disability Employment’s nationwide video contest. » Learn more

    National Organ Donation Day

Pledge to Give the Gift of Life this Valentine’s Day

Feb. 14 is National Organ Donation Day. More than 112,000 Americans, including PH patients, are waiting for life-saving organ transplants. » Learn more about organ donation

    World Rare Disease Day

Stand Up with the Rare Disease Community Feb. 29

Did you know 30 million Americans are living with rare diseases? Alone we are rare, but together we are strong. Celebrate a rare day by joining World Rare Disease Day on Feb. 29. Send a photo, contact the press, join an event and more. » Add your voice

PH News Headlines

» Studies Shed New Light on How Nitric Oxide Is Produced

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Feb. 14, 2012
Organ Donation Day
National Event

Feb. 17 - 18, 2012
British Columbia Pulmonary Hypertension Society - 11th Annual PH Symposium
Vancouver, British Columbia, Canada

Feb. 18, 2012
Strut Your Stuff Against PH
Wilkes Barre, Pa.

» Go to the Events Calendar

Video Spotlight

Migdalia Denis appeared on CNN en Español on Dec. 16, 2011 to talk about living with pulmonary hypertension.

Migdalia Denis appeared on CNN en Español on Dec. 16, 2011 to talk about living with pulmonary hypertension. » View the video

Read this week's Generation Hope blog post "Put Your Headphones On"
Make a gift that keeps on giving: Become a Monthly Donor

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.