February 8, 2012 >> back to issue

Educational Opportunities for Patients: Conference on Neonatal & Childhood Pulmonary Vascular Disease

The University of California, San Francisco (UCSF), presents the 5th International Conference on Neonatal & Childhood Pulmonary Vascular Disease on March 9 - 10, 2012. The conference will feature presentations from specialists in the field on a variety of topics, as well as a series for PH families where patients and parents will share their personal PH journeys. It will also include a breakout session focusing on the unique challenges families face when dealing with this illness.

Although this conference is primarily for medical professionals, it will be an excellent opportunity for PH families to learn, share and connect with each other. The cost of registration for patients, family members and caregivers is $10 per person. See full programming and register

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.