February 8, 2012 >> back to issue

PH Research and Education Act Gets a Wave of Congressional Support

Dawn Smith at the 2011 Congressional LuncheonThanks to the hard work of several PH advocates, the following Members of Congress became official co-sponsors of the Tom Lantos PH Research and Education Act last month:

  • Rep. Elijah Cummings (MD-7)  
  • Rep. Steven LaTourette (OH-14)
  • Rep. Todd Platts (PA-19)
  • Rep. David Price (NC-4) 
  • Rep. Tim Ryan (OH-17)  
  • Rep. Louise Slaughter (NY-28)  

The following have expressed interest in co-sponsoring and are waiting for their names to be added to the bill:

  • Rep. Jason Altmire (PA-4)
  • Rep. Jesse Jackson Jr. (IL-2)
  • Rep. Gregory Meeks (NY-6)
  • Rep Michael Michaud (ME-2)
  • Rep. Chris Murphy (CT-5)

Each of these representatives took action because advocates shared their PH experience and requested co-sponsorship of a bill that will improve their lives. According to Sara Mabry, the Legislative Aide to Sen. Robert Casey (D-PA), sometimes the easiest way to get a Member of Congress to co-sponsor the PH Research and Education Act is to simply ask them to do so: “There are literally tens of thousands of bills introduced each Congress. The easiest way to figure out which ones we need to pay attention to is by looking at the mail we’re getting and the requests constituents make. If someone took the time to write or visit about a bill, then that means it’s important to them,” says Sara.

The PH Research and Education Act is the only bill in Congress that is solely focused on improving the lives of PH patients. The bill would increase PH education and awareness for the public and medical professionals, and also encourage collaboration among PH researchers working to create the newest PH treatments and, one day, a cure.

Have you asked your Member of Congress to co-sponsor? Send your Members of Congress an email urging them to co-sponsor the Tom Lantos PH Research and Education Act. Get started today!

Then, contact Elisabeth Williams at 301-565-3004 x753 or

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.