Special Events Stories & Photos

"Sarah Smiles" Inaugural Fun Walk for PH
Camillus, N.Y., November 2011

This inaugural event honored the memory of Sarah Peek, who lost her battle with PH in 2010 at a young age. Over 130 community members came out in support of Sarah’s family, and her parents, Michelle and David Peek, spoke of the importance of raising PH awareness at the event. 

“Sarah Smiles” Inaugural Fun Walk for PH - group photo

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.