Caregiver Shout-Out!

This Shout-Out goes from pulmonary hypertension patient Jhenna Pacelli to her husband and caregiver Mike MacDonough.

Mike MacDonough and me Jhenna PacelliMy name is Jhenna Pacelli and I would like to "shout out" to my husband, Mike MacDonough. He is a truly amazing person, and I am so lucky to have him. I was diagnosed in January 2010 and since the beginning he has been by my side. He has never once treated me any differently and he has been so positive. I started Sub-Q remodulin in March 2010 and the day the nurse came to show me how to start my meds he made sure to take the day off from work to learn everything about it. If I'm too sick to mix my medications he will do it with no hesitation. I keep my site in my lower back because I have less pain there, but since I can't reach it he basically takes care of it for me. He wants to go to every doctor appointment I have and learn as much as possible about PH, and he probably knows more than I do at this point. He is my rock, my support system, and does everything he can to help me. I love him with all my heart.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.