Caregiver Shout-Out!

This Shout-Out goes from pulmonary hypertension patient Jen Cueva to her husband and caregiver Manny.

Jen and her husband MannyManny is my rock, we have been married for almost 20 years now. I would have never thought that I would be the sick one. I was a nurse prior to getting PH.

Since getting this PH diagnosis, and during the time trying to get a true diagnosis, Manny has stood by my side. He has always offered me unconditional love. As he says, our vows say, "in sickness and in health." Since 2005 he has had to take on a whole lot more around the house. He works full time but also has to do house chores and cook and take care of me.

I know PH has changed our lives greatly, but he never gives up on me and always stands beside me when everyone else leaves. I do not think I would ever have made it this far without him. I love him and want him to know how much I truly appreciate all that he does. I know it is not easy dealing with the ups and downs of PH! I am blessed to have such a wonderful, loving man!


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.