April 4, 2012

       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
   

Different Notes, Same Page...

We always talk about PHA as a community of patients, family members and medical professionals. Easy words, but explaining what that really means, that's harder. Let me give it a try through the lens of PHA's leadership meetings. » Read more

What's In This Issue
   

» Spotlight On... National Call-In Day
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...
    National PH Call-In Day

PH Community Pledges to Call-In on April 26

April 26 is PHA’s 2nd Annual Call-In Day! Join PHers all over the country as they call their Members of Congress to urge them to co-sponsor the Tom Lantos Pulmonary Hypertension Research and Education Act, the only PH-specific bill in Congress. Take a few minutes on April 26 to bring the PH community one step closer to finding a cure. » Learn more

Get Smart
    Special Events

Peer to Peer Fundraising Webinar

Thursday, April 19, 3:00 p.m. ET/12:00 p.m. PT
This webinar will feature guest speaker Jeff Love from FirstGiving. Jeff will provide tips and resources to maximize your fundraising and attendance at your special event. We’ll also share tips for connecting with your personal networks offline, too. » Register now

Living Better with PH
   

Join an Upcoming Telephone Support Group Call

Whether you're a PH patient, a caregiver or the parent of a child who has PH, PHA has an upcoming telephone support group call just for you! Be sure to join one of these upcoming meetings. » Read more

PH Community Scoop
   

PHers Shower the Community with Media Successes

Thanks to the work of some very active PH awareness raisers, pulmonary hypertension has been the subject of multiple news articles around the country. Here are just a few of the media successes from the last few weeks. » Read more

   

Special Events Spring into Action!

PHA extends a warm thank you to our volunteer event organizers who kicked off our event-ful spring season with their PHA Special Event. This month’s events had crowds gathering for some great food and entertainment – all for a cure! » Read more

From the PHA News Desk
    Pulmonary Hypertension  Association launches a new website for Conference.

Conference Early-Bird Registration Extended!

The Early-Bird discount on registration for PHA’s 10th International PH Conference and Scientific Sessions has been extended through Monday, April 9. If you haven’t registered yet, you can still take advantage of this $25/person discount. Don't wait, register now!

   

Families with PH Kids: What to Look Forward to at Conference

PHA’s International PH Conference in June is a unique opportunity to meet other families with kids who have PH. Our Parents Advisory Board has been working with us to create some outstanding programming – both educational and fun – geared just for you. » Read more in our Conference blog

   

Share Your Appreciation and Memories at Conference

PH touches the lives of many people – patients, family members, friends and dedicated medical professionals. You can acknowledge or remember the people who have touched your life with a Note of Thanks and Remembrance in the program book for PHA’s 10th International PH Conference for $25. All proceeds go toward the Conference Scholarship Fund. » Write your note today

    PHA Timeline

Check Out PHA's Rich History Through a Unique Lens

PHA now has an interactive timeline that captures the milestones that brought the PH community to where it is today. Scroll through the pictures and videos to reminisce about our community’s greatest achievements. » Check out the timeline

Medical Community Bulletin
   

Building Medical Education in PH Event in Philadelphia

Saturday, April 14, Philadelphia, Pa.
The Perelman School of Medicine at the University of Pennsylvania will be hosting the annual Alfred P. Fishman Symposium on April 14. This year’s symposium, “Pulmonary Vascular Phenotypes in Research and Clinical Care,” aims to present novel methods of phenotyping patients with pulmonary vascular disease, including genetic, metabolomic and network approaches. » Learn more

   

PHA Online University Course: Sarcoidosis-Associated PH (SAPH)

Hosted by Vivek N. Iyer, MD, MPH, this course describes the pathology of sarcoidosis, explains the multifactorial causes that can lead to the development of PH as an associated disease and the unique etiological and pathological features of SAPH. Free CME credits are available after completion of a post-test and evaluation. » Learn more

   

PHA Online University Course: Topics in Pharmaceutical Therapy

This course features three sessions from the 2011 PH Professional Network Symposium that focus on issues of special interest to pharmacists. Topics include transition of medications between inpatient and outpatient care, transitioning patients between medications, and medication safety. This course is offered for a maximum of 3.0 hours of pharmacy CEUs after completion of a post-test and evaluation. » Learn more

PH News Headlines
   

» Young UCLA Patient Crusades for Lung Disease Awareness

» Paxil: Anti-Depressant (SSRI) Causes Pulmonary Hypertension in Newborns

» Low-Dose Thrombolysis Eases Pulmonary Embolism (PE)

» 2012 CrawPHish Festival More than Just Seafood, Music

» More News

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Upcoming Events

April 28, 2012
4th Annual Scramble for a Cure
Las Vegas, Nev.

April 28, 2012
2nd Annual Walk 2 Cure PH: The Ellie Godina Memorial Walk
Euclid, Ohio

April 28, 2012
2012 N.C. Cure PH Golf Tournament
Mocksville, N.C.


» Go to the Events Calendar

Video Spotlight

Health Reform Hits Main Street

Health Reform Hits Main Street: New Video Explains Healthcare Changes 
Confused about healthcare reform? Changes in healthcare are enough to make anyone’s head spin, but now there’s a short, east-to-understand video that answers all of your questions. » Watch the video

Generation Hope Blog: Planning for College

Empowered by Membership

 
 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.