April 4, 2012 >> back to issue

PHers Shower the Community with Media Successes

Thanks to the work of some very active PH awareness raisers, pulmonary hypertension has been the subject of multiple news articles around the country. Here are just a few of the media successes from the last few weeks. Each one illustrates the various ways you can share your story with reporters to raise PH awareness in your community: Joy Morgan worked with her PH doctor to educate medical professionals in a local medical magazine, Pat Harrington shared her story and urged her community to attend her PH fundraiser, and Deb Watkins piggy-backed her awareness raising efforts onto a larger story about Portland’s St. Patrick’s Day fun run.

  • Joy Morgan teamed up with Dr. Charles Burger, head of the pulmonary hypertension program at Mayo Clinic in Jacksonville, Fla., in this feature article in PolkMD Magazine. In the article, Joy describes her diagnosis and her focus on raising PH awareness. “I don’t just accept the illness,” Morgan says. “I fight it.” Read more about Joy and her media success on p. 6 
  • Spur a Cure co-organizer Pat Harrington spoke to The Ahwatukee Foothills News about pulmonary hypertension and their special event, which raised funds for pulmonary hypertension research. Harrington describes Spur a Cure for PH as an inspiring event that makes her feel glad to be alive. “Without doctors and research, I would not be here today,” she says. Read more about Pat and her media success 
  • Portland, Ore., Support Group Leader Deb Watkins spoke to a reporter from OregonLive.com about participating in a team of more than 120 doctors, nurses, patients and other PH community members for Portland’s Shamrock Run. She told reporters that joining the more than 32,000 runners/walkers was exciting and also highlighted how far she’s come on her journey. "It's my choice how I want to live this wonderful, fabulous life," she says, "and I'm not going to live it sitting around feeling sorry for myself." Check out this media success story 

For tips on creative ways to share your story with reporters, check out PHA’s Online Media Guide or contact Elisabeth Williams at PHAware@PHAssociation.org or 301-565-3004 x753.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.