Patient-to-Patient Support Line Volunteer Profile

Melanie KozakMelanie Kozak

Diagnosed: 1998
Patient-to-Patient Support Line Volunteer since: 2011

What unique skills do you bring to the role of a Support Line Volunteer?

I was a psychology major and I never got a chance to work in that field because of my PH. I love talking about PH, talking to patients, and I enjoy being a support group leader so much that I thought I would make a great Support Line Volunteer. Because of having PH for 15 years, I’ve been on every treatment except for one and I really feel like I can relate to anyone who calls the Support Line. I was also diagnosed at 21 years old, and can relate to young adults who are newly diagnosed. I feel like I also inspire patients of all ages for having PH for 15 years, and for having it at such a young age.

What does being a Support Line Volunteer mean to you?

Being a Support Line Volunteer is such an honor. I care so much about every individual who calls in, and often times I connect with them. I am concerned about them. I put them in touch with support groups in their area or doctors and I can’t help but want to ask them to call me later. I just want to make sure they are okay and connected. It doesn’t have to be my week on the Support Line — I will talk to anyone who needs me.

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.