Patient-to-Patient Support Line Volunteer Profile

Marcia BeverlyMarcia Beverly

Diagnosed: 2005
Patient-to-Patient Support Line Volunteer since: 2011

Why are you a Support Line Volunteer?

After being unable to work as a teacher because of my pulmonary hypertension, I still had an inner sense that I had to contribute to the world. I was at a loss. I asked myself, “What will I do now?” I began looking into local volunteering, but with my physical health and family responsibilities I was unable to be consistent. Being a Support Line volunteer proved to be the best fit.

Did you ever have a memorable experience on the Support Line?

I once spoke with a girl from North Carolina who was diagnosed with an echocardiogram and was on Levaris. However the doctor did not give her a right heart catheter. He did not tell her about any treatments and told her transplant was the only option for people with PH. I was able to get her to find a doctor who has had PH patients. Finally, she did get a heart catheter, and she is now connected to the PH family. I definitely feel like I saved her life, and she is now well informed about PH.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.