Patient-to-Patient Support Line Volunteer Profile

Liz BrighamLiz Brigham

Diagnosed: 2004
Patient-to-Patient Support Line Volunteer since: 2005

Why are you a Support Line Volunteer?

Being a Support Line Volunteer helped me get over myself. Most of the time, I speak to patients who are absolutely terrified, and I have to give them hope. Being this positive for them does wonderful things for me and has changed my entire view.

Did you ever have a memorable experience on the Support Line?

One time, I was on the phone with a man who was fishing for information about PH. He was very intelligent, well spoken and articulate. He called in three times that week and kept asking many questions. I later found out that he was a physician who believed he had been having symptoms of PH. Because of his curiosity, I gave him my personal email to keep in touch. About three months later, I heard back from him. He was so thankful for my help that week.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.