May 16, 2012 >> back to issue

PH Community More Than Halfway to Reaching PHA’s Conference Advocacy Challenge Goal

Anthony Ratekin from Rep. Nunes’ office visits Perry Mamigonian’s Fresno Support Group Meeting.

Since January, PH community members have contacted their Members of Congress 562 times to request co-sponsorship of the Tom Lantos Pulmonary Hypertension Research and Education Act. Each message will be counted in PHA’s Conference Advocacy Challenge: From a Kitchen Table to Congress! Thanks to your efforts, we’re now more than halfway to achieving our goal — flooding Congress with 1,000+ messages before PHA’s 10th International PH Conference in June.

Success! Rep. Nunes and Rep. Neal Agree to Co-sponsor!

Thanks to the hard work of PH community members who’ve contacted their Members of Congress throughout this year, the bill now has two more co-sponsors! Last week, Representative Devin Nunes (R-CA) and Representative Richard Neal (D-MA) agreed to cosponsor the PH Research and Education Act.

Keep the Momentum Going — Get Us to 1,000+ Messages!

Two things will persuade a Member of Congress to co-sponsor the Tom Lantos PH Research and Education Act: numbers and powerful personal stories. You don’t have to be a PHA Conference attendee to participate in PHA's Conference 2012 Advocacy Challenge — every Congressional contact made will count towards the total. Here’s how you can help:

  1. Email your Members of Congress and request that they co-sponsor the PH Research and Education Act.
  2. Follow up with a phone call or face-to-face visit by contacting the Health Legislative Assistant in your Members' offices. PHA can help you prepare. If you're unable to call or visit, you can follow up by email. It is a good idea to follow up every six to eight weeks, but no more than that. Remember, your goal is to build a positive relationship and get your message across, not become a nuisance.
  3. Contact PHA to be counted! Tell PHA about each step in your process so we can add your efforts to our nationwide tally for the Conference Challenge. We're also available to answer questions and give you the tools to be successful! Email: or call 301-565-3004 x753.
  4. Spread the word. Urge your family and friends to join the challenge by sharing a link to PHA’s Conference 2012 Advocacy Challenge on your social networks and your email groups.

For more information about the Conference 2012 Advocacy Challenge and how you can get involved, contact Elisabeth at or 301-565-3004 x753.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.