May 30, 2012 >> back to issue

Proposed Lung Allocation Changes Open for Comment

The United Network of Organ Sharing (UNOS) uses something called the Lung Allocation Score (LAS) to help determine the allocation of organs to patients in need, including pulmonary hypertension patients awaiting lung transplant. Currently, the LAS significantly underestimates a PH patient's need for transplant, but that could change soon and you can help.

Recently, Raymond Benza, MD, of the West Penn Allegheny Health System, worked with UNOS on an initiative to “even the playing field” for pulmonary hypertension patients seeking lung transplants. As a result of this work, the Thoracic Organ Transplant Committee, a committee within UNOS, proposed revisions to the LAS system that would greatly benefit PH patients and others waiting for transplants.

UNOS and the Thoracic Organ Transplant Committee want to hear from you about these changes! They’ve opened up public comment on these revisions until June 15, 2012.

Public comments may come from private citizens, health professionals, patients, caregivers, friends and anyone else with a connection to this issue. When commenting, you may also include brief comments about your connection to pulmonary hypertension or transplant and why this policy change is important to you.

To vote and leave comments, visit the public comment section of the U.S. Department of Health & Human Services website and comment on the proposal labeled “Proposal to Revise the Lung Allocation Score (LAS) System (Thoracic Organ Transplantation Committee)” by hitting the “Go” button under Submit Comments.

Submit a comment | Learn more about the LAS

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.