"Spaghetti & Meatball Dinner and Dance"

The Port Charlotte, Fla., Support Group hosted a “Spaghetti & Meatball Dinner and Dance” — the group's first fundraiser for PHA! According to Linda Milo, the group leader, “It was a huge success. I made the sauce and my husband made the meatballs. Everyone enjoyed the dinner, so they say!” The support group raised more than $500 for the cause.

The Port Charlotte, Fla., Support Group

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.