PH Community Builds Momentum for More PH Research and Education

"In some ways, this process is a numbers game…. Because PH affects relatively few Americans compared to other diseases, it is even more important that we have a good proportion of our community talking to their Congressional representatives. We can move this legislation through, but we need your help!"
- Laura D’Anna

Awareness Letter Writing at the Conference BlogospherePHers around the country joined PHA Conference attendees in an effort to make the most of our numbers. The goal was simple: to build support for the Tom Lantos Pulmonary Hypertension Research and Education Act by urging our Members of Congress to cosponsor the only PH-specific bill in Congress. Since the beginning of the year, PHers requested their Members of Congress cosponsor the PH Research and Education Act 1280 times. Thanks to everyone for tirelessly advocating for a PH cure!

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.