Local Support Groups

Cheyenne support group

Knowledge, support, hope and empowerment: just a few of the things a PHA support group can offer PH patients. No one should face this disease alone.

Support groups offer:

  • Knowledge: Medical information delivered by PH experts and medical professionals
  • Support: Coping skills shared by other patients and you
  • Hope: An opportunity to interact and meet patients who have been managing their PH for one, five, 10... even 20 years or longer
  • Empowerment: A way to get involved, give back and say you can be part of the solution when we find a cure one day!

More and more, patients are taking part in our support group network. There are more than 240 support groups and at least one new group is added each month. You are not alone and there's a good chance there's a group meeting near you.

 

My First Meeting

Before my first meeting I was confused and overwhelmed. It was a relief to me to find out other people had caregivers. I had really been feeling guilty about needing help. At my meeting, when I saw that my husband wasn’t the only person who had come along to help, I felt better about my health and needing assistance.
-- Sally Mackey, Sumter, S.C.

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care, share, be aware

Support Group Highlights

Bonnie Keller

How the Port Charlotte Support Group Helped Me Fight back.

Read Bonnie Keller's story

Why I Lead

I am a support group leader because I want to connect everyone together. I don't like thinking about the fact that there are people out there with PH and they could be feeling lonely or like they are the only ones with this illness...
-- Heather Kirland, Treasure Valley, Idaho, PHA Support Group Leader

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.