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2012 Conference Session Recordings

Get Involved: Fighting for the Cause

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Words (and Blogging!) for Wellbeing Panelists
Video and Slides
  Words (and Blogging!) for Wellbeing
6/22/12
Presenters:
-Becca Atherton, PH Patient, Pathlight Contributor & Active Blogger in the PH Teen Community
-Ellie Falaris Ganelin, PHA Design & Publications Associate
-Megan Mallory, PHA Associate Director, Publications
-Kiara Tatum, PH Patient, Support Group Leader & Co-coordinator of the Generation Hope Blog 
     
Put the Special in Special Events Panelists
Video and Slides
  Put the Special in Special Events
6/22/12
Presenters:
-Nicole Cooper, Vision of Hope Gala, Md.
-Leslie Mahaney, PHA Special Events Program Associate
-Jessica McKearin, PHA Associate Director, Special Events
-Jeannette Morrill, New England PH Forum & Swinging for a Cure Golf Tournament, Maine
-Amy Piazza, Rolling PHor a Cure Bunco Tournament, Fla.
-Joanne Sperando-Schmidt, New York Fun Walk, N.Y. 
     
Harnessing the Power of Your Online Social Networks Panelists
Video and Slides
  Harnessing the Power of Your Online Social Networks
6/22/12
Presenters:
-Alex Flipse, Facebook PHriend, Tweeter
-Diane Greenhalgh, PHA Director, Web Services
-Pam Pedersen, e-Advocate, Facebook PHriend
-Sean Wyman, Facebook PHriend, Tweeter, Blogger, YouTuber 
     
Creativity for the Community: Exploring the Lantos Community Service Awards Panelists
Video and Slides
  Creativity for the Community: Exploring the Lantos Community Service Awards
6/22/12
Presenters:
-Mollie Katz, PHA Vice President, Community Engagement
-Previous Lantos Award Winners 
     
From Your Hometown to Capitol Hill: Become Your Own Advocate Panelists
Video and Slides
  From Your Hometown to Capitol Hill: Become Your Own Advocate
6/22/12
Presenters:
-Dane Christiansen, PHA's Washington Representative
-Joy Gore, 435 Campaign Member
-Elisabeth Williams, PHA Grassroots Campaigns Manager 
     
Creative Connections: Tips for Networking During (and After!) Conference Panelists
Video
  Creative Connections: Tips for Networking During (and After!) Conference
6/22/12
Presenters:
-Debbie Castro, PHA Director, Volunteer Services
-Kim Ford, DC and Silver Spring Capital Breathers PH Support Group Leader
-Sally Maddox, Atlanta-region PH Support Group Leader
     
Media Matters! PanelistsVideo   

Media Matters!
6/22/12
Presenters:
-Merle Reeseman, PHAware Campaigner
-Jessica Sanchez, Reporter and Anchor, WKMG-TV Orlando
-Elisabeth Williams, PHA Grassroots Campaigns Manager

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This is a program of the PHA Medical Education Fund, made possible through unrestricted educational grants from our supporters.

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.