“PHA’s history is driven by a commitment to succeed beyond our numbers. It is the continuing story of what patients, family members and medical professionals are able to do to change the history of a disease.” – Rino Aldrighetti, PHA’s president and first staff member
From simple beginnings – four women who met around a kitchen table in Florida in 1991 – the Pulmonary Hypertension Association (PHA) has evolved into an international community of over 16,000 pulmonary hypertension (PH) patients, caregivers, family members and healthcare professionals. While we have grown, PHA has stayed true to our roots and the vision and ingenuity of our founders.
To commemorate our 25th anniversary in 2016, PHA honors these Periwinkle Pioneers: 25 individuals and groups responsible for advancing care for PH patients and helping to change the history of this disease.
Read more about PHA’s history below, including stories from our founders.
The PHA Story: A Short History of PHA (PDF)
Written by founders Dorothy Olson, Pat Paton, Judy Simpson and Bonnie Dukart
A Detailed History of PHA, 1987-1999 (PDF)
Written by Gail Boyer Hayes, author of Pulmonary Hypertension: A Patient's Survival Guide
PHA History: An Overview (-2011) (PDF)
A narrative from the early days through the organization's founding and expansion.
Leading from the Heart: An Interview with PHA's President Rino Aldrighetti (2016) (MP3)
Ahead of his retirement from PHA in 2016, Rino Aldrighetti reflects on the organization's past, present and future.