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2009 PH Resource Network Symposium
Annual State of PHA Address
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Upcoming Events
1st Annual Scramble For A Cure Golf Tournament
April 18, 2009
Las Vegas, Nev.
Crawfish and a Cure: 2nd Annual CurePH Bug Boil
April 18, 2009 
Bowl PHor Cure
May 23, 2009
Wappingers Falls, N.Y.
Vol 10/Number 3 February 6, 2009
PHA logoPHANews Editor - Sally Maddox
Contributing Editors - PHA staff
reaching over 6500 subscribers

2009 PH Resource Network Symposium
"Leading Progress, Creating Partnerships: Empowering the Interdisciplinary PH Team"
September 24 - 26, 2009
Arlington, Va.
2007 Symposium speakerThe 2009 PH Resource Network Symposium is an opportunity for allied health professionals to learn the latest advances in the care and treatment of PH patients. Thirty educational sessions will take place over two days. For the first time the sessions will be separated into two tracks, allowing attendees to select sessions based on their personal level of expertise.
Another new addition at the 2009 Symposium is a research poster session! Abstracts are now being accepted in all areas of practice, and submission guidelines are available online.
Registration for the 2009 PH Resource Network Symposium opens in March 2009.
Visit the Symposium site
Rino Aldrighettie-Learning Event Series
State of PHA - An Annual Update from PHA President Rino Aldrighetti
February 18, 2009
2:00 p.m. ET
Webinar (login via web AND conference call)
2008 was a year of continuing growth and strength in the fight against PH. This webinar will be an opportunity to hear from PHA's President on what has taken place and what can be expected to come. Don't miss it!

PHA's monthly e-Learning Event series is made possible through unrestricted educational grants from Eli Lilly & Company and Pfizer Inc.

PHAware Logo
PHA's online press room is new and improved, which means that raising awareness of PH with the PHAware Campaign just got easier!
Now when you contact the media about your story or your PH-related event, you can also send them to the online press room where they'll find links to in-depth information on PH, designed specifically for the media. The online press room also has links to videos of patients, caregivers and medical professionals, which communicate the spirit of the PH community to the press.
The online press room is available at Check it out for yourself, and send this link to your local media to let them know that a great new resource is available for stories about PH.
For more information on raising awareness of PH with the PHAware Campaign, contact Katie at 301-565-3004 x749 or

Meaghan HicksThe life of every member of our PH community is precious to us and every loss is mourned. Many of you have come to know about the life and struggles with PH of Meaghan Hicks through conference and symposium presentations by her dad and current PHA Board Chair Carl Hicks. We are sorry to share the sad news that Meaghan, who underwent a heart and double lung transplant in 2007, lost her battle with PH on January 30. We mourn with Carl and his family and with all of you who have ever lost a loved one to this terrible disease.
Carl - who also became renowned for making visits to 111 Congressional offices to promote the Pulmonary Hypertension Research and Education Act over the course of two days in 2007 - has vowed to fight on with all of us. As he told PHA's Board of Trustees, "Meaghan never gave up, she never quit. We can never give up, we can never quit in this fight against PH. It is my honor and duty to be in this fight with each of you."
Watch video of Carl Hicks' speech about his Journey with Meaghan at PHA's 2008 International PH Conference
If you'd like to send a condolence message to the Hicks family, visit the Your Role section of Meaghan's Memorial site or send a message to
Pineville Recipient of Transplants Shows Thanks with Community Work
(The Town Talk) - Anitra Kimble's heart has grown bigger for Pineville after the city helped her get a new heart and set of lungs. The Pineville resident had a heart and lung transplant after being diagnosed with pulmonary hypertension in 2005. Read article 
Dr. Stuart Jamieson Named to Endowed Chair of Cardiothoracic Surgery at UC San Diego Medical Center
(UC San Diego Medical Center) - World-renowned cardiothoracic surgeon Stuart Jamieson, MB, FRCS, Distinguished Professor of Surgery and Chief, Division of Cardiothoracic Surgery at the University of California, San Diego, has been named first to hold the endowed Chair of Cardiothoracic Surgery at UC San Diego. Read article
Kindergartener Not Slowed by Rare Condition
(9 WSYR - Syracuse) - She's one of a kind in Onondaga County -- and really, there are very few like her, anywhere. Sarah Peek is a little girl with pulmonary hypertension, or high blood pressure in the main artery of the lungs. Read article

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.