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Don't Miss Out on PHA on the Road!
PHA International Webpage: New & Improved
New PH Research Opportunities
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PH in the News
California PH Forum
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Putt-Putt Fore PH
May 16, 2009
West Jordan, Utah
 2009 Carolina's 5K PH Run/Walk for a Cure
May 17, 2009
Clemmons, N.C.
Bowl PHor Cure
May 23, 2009
Wappingers Falls, N.Y.
2nd Annual Driving "Fore" A Cure
June 8, 2009
Danville, Calif.
Cure PH Texas Legacy Golf Tournament
June 12, 2009
Dallas, Texas
California PH Forum 2009
June 19-21, 2009
San Farncisco, Calif.
2009 JFK Tower Golf Tournament
June 29, 2009
New Jersey
Vol 10/Number 10 May 15, 2009
PHA logoPHANews Editor - Sally Maddox
Contributing Editors - PHA staff
reaching over 6500 subscribers
PHA on the Road: PH Patients and Families Education Forum, A Program of the PHA Medical Education Fund
Have you registered for PHA on the Road, the new PH patients and families education forum? Time is running out -- registration closes soon for this FREE one-day event:
  • Southern California Forum (Costa Mesa, Calif.) on May 30. Registration closes on May 22!
  • Central Florida Forum (Lake Buena Vista, Fla.) on June 6. Registration closes on May 29!
  • Southeast Michigan Forum (Dearborn, Mich.) on June 13. Registration closes on June 5!
  • New England (Warwick, R.I.) on June 13. Registration closes on June 5!
Registration is FREE but required! Register online today!

PHA on the Road Program Books are Available Online!
The PHA on the Road program books are now available online! You can view program information about all four Forums and see a complete list of speakers.

For more information on any of the four 2009 PHA on the Road Forums, contact PHA at or 301-565-3004.

We look forward to seeing you "on the road!"

PH InternationalAs PHA's international network grows, so does the need for comprehensive, easy-to-access information. That's one of the reasons why we're excited to show off PHA's updated International section.

Be sure to take a look at everything the updated section has to offer - especially the new Babel Fish function that allows visitors to select their languages of preference and translate the entire site.

As always, this section offers International News updates, links to materials in languages other than English, and a complete (and growing!) list of PH associations around the world. These features have been made more useful and engaging.

We'd love to hear any ideas you might have or international news you'd like to see online. Contact us at

Updated information about research opportunities in pulmonary hypertension has just been posted to the PHA Research Program page online!
The Gilead Sciences Research Scholars Program in Pulmonary Arterial Hypertension provides financial support to three junior faculty researchers for a two-year period. Each award is funded up to $100,000, to be paid in annual installments of up to $50,000 per year for two years. Application deadline is August 8, 2009.
PHA's Research Program web section features in-depth information on PHA's three research programs. Through these programs, PHA has developed strong funding partnerships with the National Heart, Lung, and Blood Institute and the American Thoracic Society. Now approaching a decade of existence, funds committed for PH research exceed $7,500,000!
To see information on grants listed above and current research grant programs go to PHA's Research Program section.
Ava LaBarge, a 3-year-old PH patientPHA is a community of individuals and families, each with their own story. We invite you to read about one family's journey with PH and how PHA was able to give them hope when they were told there was none.
Donate Now and become part of the fight against PH!
pictured right is Ava LaBarge, a 3-year-old PH patient
Cure PH Bug Boil Feeds 'Hearty' Appetites Crawfish and Cajun Cuisine
(Woodlands Online) -- 2nd Annual Cure PH Bug Boil extends its 'heart'-felt thanks to all who were involved in its crawfish fundraiser. Read article

Best Mate to go Through the Pain Barrier for Her Sick Pal
(Crawley News) United Kingdom -- Jody Brett, 29, is planning to embark on a gut-wrenching Triathlon in honor of the woman who has been her best friend since the age of four. She is raising money for the Pulmonary Hypertension Association UK in honor of her close pal, Samantha Friend, who was diagnosed with a rare lung condition. Read article
Read more Headline News ...

Coming soon to the San Francisco Bay Area, the California PH Forum is an opportunity to learn more about the latest news and standards of care for PH as well as to meet others in the community. Medical CEUs will be available for many of the workshops.
The registration fee covers all sessions, meals and a conference bag. Hotel reservations are separate and can be made through a link on the website for special rates. You can view information and registration forms online. The registration deadline is June 10.
Fun and social activities include a fashion show demonstrating creative ways to wear pumps and oxygen. There will also be a Creative Corner for anyone attending to share or display a hobby or craft. 
Want to participate? Questions? E-mail or visit for details.
PHA is a pleased to be a supporter of the CA PH Forum.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.