In This Issue
Encourage Health Professionals to Attend Symposium
Safety Tips for Summer
Prescription Assistance
PH Action Alert - Support Scleroderma Research
PH Tip Sheets
PH in the News
Join Our E-News Lists
Join our other e-news lists
  • Advocacy Action Alerts
  • Advances in PH medical journal
  • Legacy E-Newsletter
  • Mid-Atlantic PHA Volunteers (MD, VA, DC)

Not already a PHANews subscriber? Subscribe today!

Join our mailing list

Quick Links
 
Sustainers Circle - Monthly Gift
Upcoming Events
 
California PH Forum 2009
June 19-21, 2009
San Farncisco, Calif.
 
2009 JFK Tower Golf Tournament
June 29, 2009
New Jersey
 
2nd Annual Swing 4 The Cure - Wojo PH Golf Classic
Dana Point, Calif.
July 20, 2009
Vol 10/Number 12 June 12, 2009
PHA logoPHANews Editor - Sally Maddox
skshmaddox@yahoo.com
Contributing Editors - PHA staff
 
Reaching over 6,500 subscribers
www.PHAssociation.org
ENCOURAGE YOUR HEALTH PROFESSIONAL TO ATTEND THE PH RESOURCE NETWORK SYMPOSIUM 
2009 PH Resource Network Symposium. Leading Progress, Creating Partnerships: Empowering the Interdisciplinary PH Team. September 24-26, 2009. Hyatt Regency Crystal City in Arlington, VA
At your next PH appointment, ask your nurse, respiratory therapist or allied health professional to attend the PH Resource Network Symposium Thursday, September 24 - Saturday, September 26 in Arlington, Va.
 
Lisa RoesellAt the Symposium, your health professional will be educated on the latest advances in your treatment, and will be able to incorporate their new knowledge into your PH care. The Symposium includes dual tracks for the novice and advanced practitioner, ensuring relevant materials for all experience levels.

Take an active role in your PH treatment and educate your allied health professional! Direct your medical professional to PHA's homepage, or directly to the Symposium registration page at www.phassociation.org/PHRN/Symposium/

Girl on the beach
It's not too late to watch and listen to the video recording of the presentation, via our archives!
 
Mary Bartlett, M.P., support group co-leader and Chair of the Membership Committee of PH Resource Network, explains how to safely enjoy the summer weather while managing PH. This presentation is useful for patients and caregivers alike. 
 
Visit our e-Learning archive for other useful presentations.
FIND ASSISTANCE PAYING FOR YOUR PH MEDICATION
Medical ProfessionalsPHA recently collaborated with NeedyMeds, a non-profit that connects patients who cannot afford their treatment to various prescription assistance programs and resources, to create a PH-specific resource page.
 
The NeedyMeds PH Resource Page provides information about PH and simplifies the way in which you find assistance paying for your medications. Visit this site to learn more about PH treatments and treatment assistance programs!

Take Action buttonThe Scleroderma Research and Awareness Act was introduced in the House of Representatives last month, calling for increased research on scleroderma and related conditions, including PH. The Act would increase research, public education and awareness of scleroderma and related conditions, such as PH.
 
PHA and the Scleroderma Foundation have a long history of working together to raise awareness about both scleroderma and PH, and PHA is pleased to be able to support this important piece of legislation.
 
Contact your representative to support Scleroderma Research and Awareness Act.
LOOKING FOR ADVICE?
DNA strandPHA offers useful tips and tricks for all members of the PH community in the PH Tip Sheets!
The advice comes in all forms, from "Vacation Mishaps" to "Structured Exercise and PH."
 
Recent additions include:
 
Ask a PH Specialist: What is the status of stem cell research for treating PH? (PDF)
 
Genetics, PAH, and GINA: How Do They Affect Me? (PDF)
 
Hints: Feeling Blue: What to Do When Sadness Becomes Depression (PDF)
PH in the NewsPH IN THE NEWS
Pulmonary Arterial Hypertension and Response to Tadalafil (PHIRST)
(cardiosource.com) -- The current study sought to investigate the role of tadalafil in patients with PAH, with and without bosentan. Read article
 
New Pathway Found Underlying PH
(sciencedaily.com) -- You-Yang Zhao and colleagues at the University of Illinois College of Medicine, Chicago, have identified in mice a new molecular pathway underlying PH that they hope might provide novel therapeutic targets. Read article
 
MPs Support Campaign Against Charging Air Passengers for Oxygen
(healthcarerepublic.com) United Kingdom -- A campaign to stop airlines penalizing passengers with breathing difficulties backed by two charities is being supported by 165 military police officers from across the political spectrum. Read article

Leave a Legacy

Plan for the Future with Assistance from PHA's Legacy E-Newsletter

This informative e-newsletter features donor stories, gift planning news, up-to-date information on estate planning that will help you and your family, and practical advice all of us can benefit from, such as how to organize our important papers.  

Sign up now and receive this free monthly e-newsletter at no obligation.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

For the best viewing experience of this site, it is recommended that you use Internet Explorer 8 or 9 or Firefox.

© 2014 Pulmonary Hypertension Association. All Rights Reserved.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy   Virtual Tour of Website    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.®

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.