Special Events Stories & Photos

July, 2008
"Swing 4 The Cure" Golf Tournament

On the Green: Creating Awareness, Building Community and Raising funds for A Cure

participantsThe "Swing 4 the Cure" Wojo Golf Classic was organized by Betty Lou Wojciechowski and her daughter Michelle Sweitzer and son Mark in memory of Jerry “Wojo” Wojciechowski who lost his 13-year battle with PH in 2007. Jerry had familial PH, and Betty Lou and Jerry had previously lost two sons – Matthew and Michael – to the disease.

The tournament, held in Dana Point, Calif., in late July, was one way the Wojo family continues to fight back against this illness. It was a great memorial tribute to Jerry and his sons. Betty Lou and Michelle’s goals were to build community, expand local awareness of PH and raise funds for research. By those standards – with almost 100 volunteers involved, strong sponsorship and 80 golfers – the event was a great success. The silent auction and raffle table were described as “overflowing with donations” as so many people wanted to contribute to the photo


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.