OUR JOURNEYS

Patient story

Eleanor Everett

In 2002 I had gone to so many doctors but no one knew what was wrong with me. My legs and feet were so swollen that it hurt to walk. I then developed a dry nagging cough that seemed to bother me mostly at night. I was so short of breath that I couldn't walk to the lunch room. I even started coughing up blood.

On may 28 of that same year I was sent to Maine Medical Center in Portland. After weeks of testing I was diagnosed with Pulmonary Hypertension. Because I was seven months pregnant, surviving child birth was very slim. I was told that I could die. Although I told them that I was going to be fine, they were concerned. On July 14, I gave birth naturally to my son William -named after Dr. Williams who got me through my ordeal. I can no longer work, but I spend my time writing and taking care of my three children. I am on Flolan with no oxygen and I do very well.

Southparis9@aol.com

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.