Patient story

Carolyn Lombard

Hi Fellow PHers, and PHA staff. My name is Carolyn Lombard. I am 45 years old and I was diagnosed with PH four years ago. I'm married to the most wonderful man in the world. I have two children ages ten and twelve.

I've tried just about every therapy out there. I'm on Flolan, and I have had the best results with it, so far. I really wanted to share with everyone, that with the help of many people and companies, I had a fundraiser on June 7 and raised $1,565.00. I held a game day fundraiser, where we played some board games, dice games and card games. I was expecting about forty women, and had half of that show. However, we still had a great time, and raffled away a lot of gifts. I had a pampered chef fundraiser last year, and raised over $1,000. So, I'm thrilled to say that we did much better this year, and hoping that next year will be even better!

I want to thank Accredo pharmaceuticals, and my family and friends for all of their support. I want you to know that I spoke with your fundraising department and they were like every other department: just wonderful and helpful.

Thank you for letting me share my story.


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.