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Patient story

Jessica McClure

Hello to All

My name is Jessica McClure. I'm a 29 year old mother who was just diagnosed with Pulmonary Hypertension in Aug /06 after giving birth to my little girl on August 25the, 2006. I had gotten up to take my walk after my c-section so amoina don't set in and started to get light headed and after a few minutes and 10 steps I collapsed.

When I woke up I was told what had happened and that my new born premi was being sent to a hospital cause she would go into a deep sleep and her heart rate would fall too low. I never got to hold her before she was transported just got to look at her for 5 min and they took her away.

That’s when I was told that the reason I collapsed was because I was flooded with fluid like 60 lbs or more and was rushed to ICU to be taken care of due to the fact I had less then 2 hrs to live if the doctors didn’t get this unwanted fluid out of me. Well, the doctors at the hospital did what they could do and sent me to another doctor due to the fact I was just tested and found out I have Pulmonary Hypertension.

Well, no one knows how to treat this and I was starting to retain more water so they rushed me to the best Pulmonologist in the world, Ms. Dianne Zwicke. After I was drained of the un-wanted fluid, I started coming around and life was looking better for me!!! Dr. Zwicke came in and explained what had happened to me and what I have. This is a woman who doesn’t beat around the bush everyone.... and she told me that I'm on the verge of death and her and her staff are doing everything it takes to get me out of the danger zone.

So after 4 weeks in the hospital and 12 different meds to keep me alive (like viagra, lasic, Remodulin, Ventavis, and so on and so forth, I'm still here and enjoying life.

I do not have a circle of friends or family to be supportive, just 1 friend and a boy friend, and my mother is worthless. She lives with me and smokes in the home, doesn’t clean up after herself or anything. I have a 14 yr old son – yes, a teenager - who is so disrespectful to me and lazy and dirty. I live in a 3 story home and have to clean it all by myself, do the laundry myself, and if I ask for the laundry to be brought down, I get the worst attitude. So this is my story so far on my live with PH.

 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.