OUR JOURNEYS

Patient story

Robin Nelson

My name is Robin Nelson. I just had a baby April 15th, 2005. After I got to go home with my new baby, I started getting dizzy and out of breath. I was scared that I might drop my child.

I have also always been severely fatigued, but I couldn't tell if it was my pregnancy or not, now I know. I have had a chronic cough as long as I can remember. I went to me doctor and he thought I had asthma. I went to the doctor that delivered my baby again on September 15, 2005 and he heard a murmur in my heart. On September 19, 2005 he scheduled me for an echo, and I was told that same day that I have pulmonary hypertension.

On October 7,2005 I was put in the hospital for a heart cath. I now am on a Remodulin pump with the hickman cath. It is taking a lot to get used to. Not to mention figuring out what I can do with my baby now. I miss being able to give her a bath, but she splashes and I am afraid to get my cath wet so my mom bathes her. My husband and family all are taking this pretty hard. I try not to but when you just had your first child and find out you have a heart disease and you are young I worry mainly for my new baby. I don't want her to grow up without a mother. I have a good bit of good days now, but of course I get down in the dumps a lot too.

 

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy   Virtual Tour of Website    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.® | © 2014 Pulmonary Hypertension Association. All Rights Reserved.

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.