Patient story

Monica Sifuentes

I recently got diagnosed with PH on my 30th birthday. I feel scared, confused and worried for my two daughters 11 and 3 years old. I want to be with them as long as possible. I started treatment with Revatio and so far I feel a bit better. My family is giving me a lot of support and has done their research to better understand PH and how they can help me in the coming years.


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.