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Patient story

Nancy Stubbs

Arterial Pulmonary Hypertension (idiopathic)

I take Ravatio and 125mg of Tracleer - they are in other states and want me to move I can’t as I am trying to work so I can try to take care of myself. I also got worse since I went to group meeting. I am also hyposemic I have really been depressed because no one from that group has stayed in touch. I don’t think they like me. Thank god for sure steps my enzymes are also high. On the 26th of Dec. I go for more blood work, but people I talked to were super, then I joined PHA. I am very new to my computer as you can probably tell.

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.