Memorial story

Nancey Jane Schira

by Jeff Cox

Nancey Jane Schira passed away September 26, 2007. For the last twenty years that I have known Nancey, she has fought Diabetes and congestive heart failure. Easily fatigued, and her lack of energy, leads me to believe that early signs of PH were not diagnosed in time to help her. Irregular heart beats led to restarting her heart with electric shock, and eventually a pacemaker. Sadly, she found out that the best medicines to treat PH are one, too costly and another, not covered by Medicare until the blood pressure is so low that no other medicine can regulate it. Nancey had been on dialysis for approx. 2 years, which lowered her blood pressure, to the point where she was put on a breathing tube and the PH treated with atclear would not allow her to receive nutrition for over a week and was followed by her passing. I tell this story in loving Memory of my mother-in-law who was a lover of all living things, Nancey Jane Schira.


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.