Caregiver story


November 18, 2008

I am the surviving widower of a beautiful, loving, courageous PHer whom I choose to honor via this (message). While I have vivid and wonderful memories of our short time together, I want to use this e-mail to offer words of encouragement to the caregivers, spouses, SO’s, children, and other relatives and friends of all PH patients. Your support and love are so verrrrry vital and important to your loved one with PH. While you are taking care of your loved one, remember to take care of yourself. Keep an open dialog with your support group and do let yourself feel!


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.