Caregiver Story

Brian Corrigan

When my beloved wife was diagnosed in 1993, she was told she had perhaps two years. She is a strong woman, though, and said, "If I have two years to live, I am going to LIVE those years."

We packed up and went to the United Kingdom. I showed her London and the world of Shakespeare (which I teach at university). Then she showed me St. Andrews, Scotland, where she had attended university.

She said, "I'd like to have my memories of this beautiful place preserved somehow." That was the beginning of the novel, THE POET OF LOCH NESS, which I wrote for her.

She stayed strong to see the novel completed. She stayed strong to see it accepted by a large New York publishing house. She stayed strong for another two years to see it come out. While we waited, anticipating, Bosentan came along and has saved her life.

She still credits THE POET OF LOCH NESS with helping her remain positive and hold on. It has now been twelve years since her diagnosis, and, thanks to Bosentan, she is better today than she was then.

THE POET OF LOCH NESS revolves around a woman suffering from PH who returns to Scotland to live out a past she thought she could not have. It is about true love.

THE POET OF LOCH NESS has taught us that a positive mental attitude and genuinely looking forward to the future is good medicine.

The novel, by the way, came out in June of 2005 from St. Martin's Press, was instantly named a Book Sense "Notable Title" by the American Bookseller's Association, and has won several national awards including the Bancroft prize in fiction. Its first printing has sold out, and it is going into second printing even as I write this. It will be printed in Europe in 2006.

Be sure to look at the very last page of the book for a special thanks to the genius who invented Bosentan and saved my beloved wife. You may purchase the novel over or from any bookseller.


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.