Caregiver story

Carmel Norton

I lost my daughter Sarah 23rd February, 2004. She had two weeks to go having her first baby, and the baby was not growing and was stressing, they started to induce her, then decided to take her to ceaser.

Her lungs were at 89, after the ceaser the lungs were 59. We were not aware of her lung condition we didn't know anything was wrong with her. They thought she had a clot. After a test they knew it wasn't a clot. Other tests were to be done the next day, that was too late. We lost our beautiful daughter, mother, sister, partner and aunty.

We found out from the coronor that she died of PPH. In her memory we are starting a support group in Australia. We have raised $11,000 so far [July 2005], which is only the beginning.

Sarah loved life, she worked at the local Cancer care centre, and allways lifted someones day with her smile.

Her little boy Ethan is doing well, he knows his mother, we show him a photo and he kisses it.

Sarah was my youngest of four daughters, I lived my life for my children, and we will never be the same.

If only we can help one person, it would be worth it. Awareness of this disease, and money for research is our aim. Sarah would be proud to see what we are trying to achieve. My strength is my three other daughters and my grandchildren, and trying to help someone else.


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.