Nov. 1, 2012 >> back to issue

Things I Found on PHA's Website: Preparing for Emergencies

EmergenciesWhen Hurricane Sandy headed toward us, emergency planning was a priority for many in the PH community. If we were not in the path of the storm, we were thinking of our PHriends who were, hoping they would be safe. On the PH Discussion Board, I read: "I hope all my PHriends along the East Coast are hunkered down with plenty of food, water, O2, and any other necessities of life. For me that includes a few good books too. We are prepared for several days without power as Sandy/northeaster passes thru. This too shall pass!"

With emergency preparedness on our minds now, it is a great time to prepare for the next one, whether that is a storm, an accident or a health crisis. Being as prepared as possible will ease the anxiety both before and during an emergency.

This month, I found several resources on the PHA website to help patients and caregivers prepare for emergencies. Learn about creating an emergency kit, educating your emergency responders and ordering a MedicAlert identifier. There is a recording in PHA Classroom - a session from PHA's 2010 International PH Conference - called Emergency Situations and Primary Care Issues. It features a panel of four PH medical professionals who answer audience questions, and there is a PDF of the session handout.

Don't miss the PHA Classroom chat transcript: Emergency 101: How to Prepare Yourself and Others for PH Emergencies. It includes expert advice in response to questions from PH community members. As one of the experts in that chat said: "... all things can happen suddenly and sometimes when you least expect it so preparation will be the key to helping your potential emergency be handled efficiently and with the best of care."

Be prepared, and stay safe.


Kathryn Frix

Kathryn Frix
Online Community Liaison

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.