Dec. 12, 2012

       
 
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Diane Ramirez

Sometimes Those That Have Lost The Most Give Most Back ...

Those were the words of the Fox 8 news anchor in Winston-Salem, N.C., as he interviewed PHA advocacy leader and Board member Diane Ramirez. It's true. So many of those in our community take what life has put in their path and grow heroically.  » Read more

What's In This Issue
   

» Spotlight On... Staying Healthy During the Holidays
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...
    Happy and Healthy During the Holidays

How to Stay Happy and Healthy During the Holidays

By Crystal Weber, RN
PH Nurse Clinician at Duke University

The holidays are a time for family, togetherness and celebration. Everything should go perfectly, right? But if your house is anything like mine, time seems to move twice as fast, and laughter is paired with chaos and the occasional disaster. However, these tips can make holidays go more smoothly. » Learn how

» And don't forget to check out the upcoming webinar on healthy food shopping (see below)

Get Smart
    Yoga

Calm, Cool and Collected: Restorative Yoga for the PH Patient

Tuesday, Jan. 22, 2 p.m. ET/11 a.m. PT
Yoga can be a safe, restorative and rewarding option for PH patients looking to stay active. Join Rana Awdish, MD, for a presentation on the benefits and best practices for PH-friendly yoga. » Register now

Living Better with PH
    Healthy Food Shopping

Keys to Healthy Food Shopping

Friday, Dec. 14, 12 p.m. ET/9 a.m. PT
Prepping for a big meal this holiday season? Before you head to the grocery store, tune in to a live webinar this Friday to get tips on healthy food shopping. » Register now

PH Community Scoop
    Honolulu Proclamation

PHers Raise Awareness to Lessen Misdiagnosis

PH Awareness Month

This November, when we asked you to spread the word that Sometimes it’s PH, our community members responded in a huge way! In 30 short days, PHers were everywhere — in news headlines, community events, government offices and online! » Find out what they did

    Share Your Awareness Month Stories and Photos

What Did You Do For Awareness Month?

PH Awareness Month

Now that PH Awareness Month is over, we'd like to hear what you did to spread knowledge of PH. Send us your stories, news articles, proclamations, short anecdotes, photos, videos, etc. We will share these with the entire community so they can see what we have achieved together. » Share your stories & photos

From the PHA News Desk
    Conference Theme Contest

Last Chance! Submit an Idea for the Conference Theme Contest

The deadline for entries in the Conference theme contest is fast approaching. If you have an inspiring theme idea for our 11th International PH Conference, be sure to submit it by Dec. 15! The Conference will take place June 20 - 22, 2014, in Indianapolis, Ind., and the winner of the contest receives a complimentary registration. » Send us your idea

Medical Community Bulletin
    Videos from Keystone's Symposium on Pulmonary Vascular Disease

Medical Professionals: Watch  PVD Conference Highlights

Select videos are now available from Keystone Symposium’s four-day conference in September on pulmonary vascular disease and right ventricular dysfunction. Learn about research developments from leaders in the field such as Stephen L. Archer, MD (University of Chicago Medical Center). » Watch now

PH News Headlines
   

Research & Treatment News
» Fetal NSAID Exposure Not Tied to Persistent Pulmonary Hypertension

Updates From PHers Around the World
» Four Local Friends Travel Across Country Raising Awareness, Money for Lung Condition

» Insights into Helping Patients Better-Manage COPD and Other Chronic Illnesses

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Telephone Support

Parents
Dec. 13, 2012
8:30 p.m. ET/5:30 p.m. PT

Caregivers
Dec. 19, 2012
1:30 p.m. ET/10:30 a.m. PT

Patients
Dec. 27, 2012
8 p.m. ET/5 p.m. PT

Video Spotlight

Juan Alejos, MD, Discussed PH on KKJZ

Juan Alejos, MD, of UCLA Mattel Children's Hospital was a special guest on Long Beach, California's radio station, KKJZ and two other stations. Dr. Alejos spoke with radio host Mike Johnson about the causes and symptoms of pulmonary hypertension and the importance of early diagnosis. He also touched on tips for PH patients to improve their quality of life. Special thanks to PH patient Alex Flipse for developing this opportunity!  » Listen now

Read this week's Generation Hope blog post "Life ... and Death"
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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.