Nov. 14, 2012


       
 
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Merle Reeseman

Awareness Month Voices from the PH Community

As promised on my earlier Awareness Month blog, I'll be posting stories of inspiration and awarenss throughout Awareness Month. Here's a note from PHA member in Pennsylvania, Merle Reeseman. Can one person make a difference? It's the only way a difference can be made. » Read more

Discover other Awareness Month stories from our community

What's In This Issue
   

» Spotlight On... Online Awareness Day
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...
    Share Your Awareness Month Stories and Photos!

Now It’s Your Turn: Share Your Awareness Month Stories and Photos

PH Awareness Month

What have you been up to for Awareness Month? Send us your stories, news articles in the media, proclamations, short anecdotes, photos, videos, etc. We would love to share these with the entire community so we can all join in on the excitement. » Share your stories & photos

Get Smart
    Colleen Brunetti explains the benefits of volunteering

Volunteering: ‘How I Fight Back Against PH’

Just a few weeks ago, Carl Hicks traveled to Seoul, Korea. The new Korean PH association had invited him to help infuse the same spirit of volunteerism that they had seen in PHA into their own  organization. As an important part of his presentation, Colleen Brunetti spoke on video about what volunteer involvement means to her and the PH community. » Watch now

Living Better with PH
    Holidays

Four Ways to Keep the Holidays Special Despite PH

Lots of people complain of holiday stress as they fill the weeks of November and December with cooking, decorating, gift-giving and more. Yet these high-energy preparations are even harder with PH. To work around your illness and still enjoy this season, check out these tips PHA gathered from PH patients through Facebook and email. » Learn how

PH Community Scoop
    Caregiver Shout-Out

Let's Hear it for Caregivers! Nov. is Also Caregiver Awareness Month

PH Awareness Month

“Let's acknowledge with gratitude and praise what our caregivers do for us, how much we depend on them and how different our lives would be if they were not around.” — Graeme Warner
Support from our family and friends is the backbone that keeps the PH community strong. » Read our caregiver shout-outs and submit your own!

From the PHA News Desk
    Conference Theme Contest

Submit Your Idea for the 2014 International PH Conference Theme Contest!

Submission deadline: Dec. 15
PHA needs your help! We’re looking for an inspiring theme for our 11th International PH Conference and Scientific Sessions, which will take place June 20 - 22, 2014, in Indianapolis, Ind. The winner of the Conference Theme Contest will receive a complimentary registration to this one-of-a-kind educational gathering. » Submit your theme idea

Medical Community Bulletin
    History of PH

Video Series: History of PH

Our knowledge of PH comes from more than a century of research, discovery and development – a legacy established by founders of the field. Hear first-hand from some of these trailblazers and their colleauges in this this collection of videos on the early achievements that have advanced PH research and treatment. » Watch now

PH News Headlines
   

» Watson to Sell Generic Version of Pfizer's Revatio

» Retired, Needing Oxygen and Trying to Pay His Bills

» Do You Know About Pulmonary Hypertension?

» First PH Marathon Deemed a Success

» Serious Condition Often Goes Undiagnosed

» Pulmonary Hypertension Awareness Month: 6-Minute Walk for Breath

» University of Illinois Hospital Offers Treatment for Lung Disease

» More news

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Telephone Support

Patients
Nov. 15, 2012
8 p.m. ET/5 p.m. PT

Parents
Nov. 15, 2012
8:30 p.m. ET/5:30 p.m. PT

Caregivers
Nov. 21, 2012
1:30 p.m. ET/10:30 a.m. PT

Upcoming Events

Nov. 16, 2012
Mass. Senior Action Council  Cambridge Chapter Monthly Mtg
Cambridge, Mass.

Nov. 17, 2012
Puyallup Six Minute Marathon
Puyallyup, Wash.

Nov. 24, 2012
Harker Heights Six Minute Marathon
Harker Heights, Texas

Video Spotlight

Zebra PHriends Appear on Good Morning Texas

The 6th Annual North Texas "Zebra PHriends" 5K & PHun Walk took place this month, drawing about 500 attendees and raising more than $12,000 for PHA’s research and patient and family-serving programs. Before the PHun walk, the organizers appeared on Good Morning Texas, where they talked about pulmonary hypertension, how the zebra represents PH and their event. » View the video

Read this week's Generation Hope blog post "PH Awareness Month Continues"
Are you a federal employee? Support PHA
Gain some piece of mind: A handy way to keep your medical documents in order
 
 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.