Nov. 28, 2012


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PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Congressional Luncheon

Awareness Month: Congressional Luncheon

On Tuesday, Nov. 13, we had our annual Congressional Luncheon. It is always held on Capitol Hill and this year was in the Dirksen Senate Office Building. I particularly liked that because Sen. Dirksen, who was a Republican from Illinois, was one of those large personalities who defined the greatness of American politics for me as I was growing up. » Read more

Discover other Awareness Month stories from our community

What's In This Issue

» Spotlight On... Conference Theme Contest
» Get Smart
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...
    Conference Theme Contest

Want to Attend PHA’s 2014 International PH Conference for Free?

There’s still time to submit a theme idea for our 11th International PH Conference and Scientific Sessions, taking place June 20 - 22, 2014, in Indianapolis, Ind. The winner of the Conference Theme Contest will receive a complimentary registration to this unique educational gathering. Submission deadline is Dec. 15. » Submit your theme idea!

Get Smart
    Medicare Part D chat transcript

Fill Up on the Facts

Turkey, gravy and … Medicare? You may still feel stuffed from Thanksgiving, but don’t skip out on information about Medicare Part D, the Medicare prescription drug option. Gearing up for Open Enrollment: An Online Chat on Medicare Part D is now available online. Amy Jackson of the Caring Voice Coalition and Doug Taylor, a PH support group leader, give tips on choosing a plan that will meet your prescription drug needs. » Read the transcript here

    Tips for healthy shopping

Keys to Healthy Food Shopping

Friday, Dec. 14, 12 p.m. ET/9 a.m. PT
Does shopping for healthy foods seem daunting to you? With the countless number of options available, how do you know what to buy? Misty Lewis, a certified health coach, will take you on a virtual grocery store tour and present tips on healthy food shopping. Get a head start on your New Year’s resolution to eat better in 2013! » Register now

Website Discoveries
    In Sickness & Not Health

Things I Found by Kathryn Frix: PH Related Items in the PHA Store

You may be familiar with the PHA Store and may have purchased items such as the adorable Phineas — PHA's newest "PHriend.” I call mine the Flame Guy. While in the PHA Store, have you ever clicked on the PH Related items link? This morning, I did. » Read more

PH Community Scoop
    Virtual Candlelight Vigil

Virtual Candlelight Vigil

Wednesday, Dec. 5, 2012, 9 p.m. ET/6 p.m. PT
For those who have experienced the loss of a loved one, the holidays can be very challenging. Join us for a virtual candlelight vigil to reflect, share and discuss the loss of a loved one due to pulmonary hypertension. The call will be facilitated by Rev. Steve White, PhD.  » Join us

    Congressional Luncheon

Congressional Luncheon Reaches Legislators from Coast to Coast

PH Awareness Month

More than 30 PH community members from 12 states met with their senators’ offices to request co-sponsorship of the Tom Lantos Pulmonary Hypertension Research and Education Act, boasting the most diverse group of PHers and their loved ones ever at this year’s Congressional Luncheon and Advocacy Day.  » Find out why

    Thank you to our November Special Events

November Special Event Organizers: We Thank You! 

PH Awareness Month

As PH Awareness Month rallies to the finish line, PHA thanks all of our volunteer special event organizers who spearheaded fabulous events over the last few weeks. Their efforts helped raise awareness and funds all in the name of finding a cure! » Check out all the events that happened this month across the country!

From the PHA News Desk
    PH Patient Testifies Before the FDA

PH Patient Makes Our Voices Heard Before the FDA

Thanks to a new law, the Food and Drug Administration (FDA) will expand the way it gather patient input during its review and approval of drugs and devices. The FDA plans to select 20 specific disease communities to focus on in 2013 and PHA made waves to get a spot in this select group. » Learn more

    Make a Gift to PHA and See It Double!

Make a Gift to PHA and See It Double!

PHA’s programs and resources are funded by the generosity of community members like you. Help PHA continue to provide invaluable education and support programs for the entire community by making a donation today. Right now, thanks to a matching gift challenge from Actelion Pharmaceuticals, the first $25,000 in donations will be doubled — so each donation has twice the impact! » Donate today

Medical Community Bulletin
    Webinar on Early Diagnosis of PH

Common Symptoms, Rare Disease: Early Diagnosis of Pulmonary Hypertension

Thursday, Nov. 29, 2 p.m. ET/11 a.m. PT
Once considered rapidly fatal, pulmonary hypertension is now treatable with nine therapies available. Yet treatment is all too often reaching patients too late. Join Drs. Lynn Brown and Peter Leary as they discuss the importance of early diagnosis of PH and how to properly screen for it. » Register now

PH News Headlines

Research & Treatment News
» Two Generics of Pfizer's Revatio OK'd

» Xarelto Wins Nod for Pulmonary Embolism, DVT

» Pulmonary Complications Often Fatal in Systemic JIA

Updates From PHers Around the World
» Louisville, Ky., Woman Who Receives Heart, Double-Lung Transplant Happy to Be Celebrating Thanksgiving

» Lucky Crumb Cake from a PH Patient's Family Is a Secret Weapon For Giants, High School Team

» PH Patient Receives Proclamation for PH Awareness Month!

» March 23 Set for CrawPHish Fest

» Pulmonary Hypertension Awareness Month: 6-Minute Walk for Breath - Vancouver, Canada

» More News

Connect with PHA

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Telephone Support

Dec. 13, 2012
8:30 p.m. ET/5:30 p.m. PT

Dec. 19, 2012
1:30 p.m. ET/10:30 a.m. PT

Dec. 27, 2012
8 p.m. ET/5 p.m. PT

Upcoming Events

Nov. 30, 2012
10th Annual Update in PH
Cambridge, Mass.

Video Spotlight

Shair Caffrey was awarded a Local Lady Godiva award and this video was made recently at her award ceremony

Shari Caffrey lost her 4½-year-old daughter, Taylor, to PH three years ago and founded the Taylor’s Wish Foundation aimed at raising PH awareness and funds for research. This past summer, she was awarded a Local Lady Godiva award, and this video was made recently at her award ceremony. » View the video

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.