Oct. 3, 2012

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Barst Fund

The First Pediatric PH Research Fund is Opening Its Doors

In little more than a decade and a half, we have seen incredible growth in the field of pulmonary hypertension. We have gone from no treatments to nine, from being a disease of little notice in the medical community to one with great and growing educational structures, from hopelessness to hope. » Read more

What's In This Issue

» Spotlight On... Congressional Luncheon
» Get Smart
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...
    Conchita Watson and Kimberlee Ford at PHA's Congressional Luncheon

Put a Face on PH with PHA’s Congressional Luncheon

“I'm one person. I've been in that congressional office and I've gotten a Member of Congress to co-sponsor [the PH Research and Education Act]. If you get to one person, you make a difference." 
— Nicole Cooper

PH Awareness MonthPut a face on PH this November by participating in PHA’s Congressional Luncheon. Invite your Members of Congress now or attend in person on Nov. 13. » Learn more and RSVP

Get Smart
    Medicare Part D

Gearing up for Open Enrollment: An Online Chat on Medicare Part D

Wednesday, Oct. 10, 2 p.m. ET/11 a.m. PT
Medicare Part D open enrollment — your opportunity to make changes to your Part D coverage — begins Oct. 15. Prepare for open enrollment with PHA’s interactive web chat. Join us to learn tips on the process, from what to look for in a Part D plan to how to navigate the online plan finder. » Register now

Website Discoveries
    PHA Classroom

Things I Found by Kathryn Frix: PHA Classroom

I found a great resource on the PHA website this month, and I was thinkingit just might be my favorite part of the website. Then I realized choosing a favorite section would be like choosing a favorite niece or nephew. But let's say I wanted to spend 12 hours a day for a week with one of them, and I had to choose one. I could do that. » Read more

PH Community Scoop
    PHA On the Road

PHA on the Road: Registration Still Open!

There is still space left at the upcoming Chicago, Ill., area PHA on the Road forum on Oct. 13. Don’t forget to register for this FREE regional patient and family education event. Online registration closes Oct. 9 at 3 p.m. ET/12 p.m. PT. » Sign up now

From the PHA News Desk
    Web of Friends

Awareness Month Tip: Make A Big Difference without Breaking a Sweat

PH Awareness MonthWant to make a big impact this Awareness Month, but don’t have a lot of time? Tell your PH story through a personal awareness and fundraising page to educate your friends and family and raise money to fight PH. It’s quick, easy and secure. » Get started!

Questions? Contact or 301-565-3004

Medical Community Bulletin
    PHA Online University

Missed a PHA Online University Webinar?

Watch these recorded webinars and check out upcoming ones at the hub for PH medical education:

Also of Interest
    Long-term care

Could You Benefit From Long-Term Care?

People living with chronic illnesses often need long-term care to help with everyday activities like dressing, eating and other day-to-day tasks. The U.S. Department of Health and Human Services offers online tools and guides to help you decide if long-term care meets your needs or those of someone you care about. » Check out videos and other resources

PH News Headlines

» Sleep Quality Poor in Patients with COPD

» One-Year-Old with PH Home From Hospital After Complications

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Telephone Support

Oct. 17, 2012
1:30 p.m. ET/10:30 a.m. PT

Oct. 18, 2012
8:30 p.m. ET/5:30 p.m. PT

Oct. 25, 2012
8 p.m. ET/5 p.m. PT

Upcoming Events

  Oct. 6, 2012:

Baltimore PH Walk for HOPE
Baltimore, Md.

9th Annual Georgia Fun Walk for a Cure
Marietta, Ga.

8th Annual New York Fun Walk
Lindenhurst, N.Y.

» Go to the Events Calendar

Read this week's Generation Hope blog post "Sometimes It's PH!"
Are you a federal employee? Support PHA
You're not alone with PH: Learn how other patients and caregivers cope

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.