Sept. 19, 2012

       
 
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Special Events

The Meaning of Events - Part 2

On June 30 I published a blog titled, "The Meaning of Events." It included a video filmed at the Power for PH PHun Walk for a Cure in Edison, N.J. Today, I received a comment on that blog asking for information about the Country Happenings PHun Walk that took place around the same time I was writing that blog. » Read more

What's In This Issue
   

» Spotlight On... Get in on the Action
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Also of Interest
» PH News Headlines

Spotlight On...
   

Get in on the action with PH Awareness Month!

 

Get in on the Action with PH Awareness Month!

Wed., Sept. 26, 2 p.m. ET/11 a.m. PTPH Awareness Month
When you raise awareness about PH during Pulmonary Hypertension Awareness Month in November, you’re part of a global team thousands strong. Get your awareness-raising juices flowing and your how-to questions answered with this interactive webinar. » Register now

Get Smart
    Make the News

Shine the Media Spotlight on YOUR PH Story

Thursday, Sept. 20, 3 p.m. ET/12 p.m. PT
Would you like to see more stories about pulmonary hypertension in the media? With advice and materials from PHA, you — and PH — can make the news! PH patient Jeannette Morrill and Mollie Katz, PHA’s Vice President of Community Engagement, will share strategies for catching journalists’ attention and getting media coverage. » Register now

Living Better with PH
    Dial in for Telephone Support

PHA’s Monthly Patient Telephone Support Group

Next meeting: Thursday, Sept. 27, 8 p.m. ET/5 p.m. PT
Want to chat with another patient? Can't make it to a local support group meeting? A support group is only a phone call away. Our patient telephone support group makes it easy to participate regardless of your work hours, distance or health concerns. » Get details

PH Community Scoop
    Colorado Run for PHun

A September to Remember!

PHA extends a warm thank you to our volunteer special event organizers who kicked off our fall special events season by gathering their communities to walk, ride, golf and play for a cure! » Read more

From the PHA News Desk
    Proclamation

Hear Ye! Hear Ye!

PH Awareness MonthUrge your elected officials to proclaim November Pulmonary Hypertension Awareness Month. Follow these easy steps to spread PH awareness in your city, county and state.  » Get started

Also of Interest
    Combined Federal Campaign

Federal Employees: Fundraise for PHA in Your Workplace

Are you a federal employee, active member of the military or a postal worker? Then you may be eligible to support the Combined Federal Campaign (CFC), the world’s largest workplace giving campaign. Simply designate PHA with CFC number 12097 to help fund vital research and provide patient support, educate medical professionals and raise awareness of PH. » Find out how you can get involved

PH News Headlines
   

» New Arterial Insights Portend Potential Treatments for Life-Threatening Diseases

» Artery Size May Predict COPD Flares

» Palliative Care Program for Kids Helps Patients, Parents Cope

» Still Swinging: Golfer Diagnosed with Deadly Disease Outlives the Odds


» More News

Connect with PHA

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Upcoming Events

Sept. 22, 2012
Thirsting for a Cure
Newberg, Ore.

Sept. 29, 2012
Roanoke PHun Walk for Pulmonary Hypertension
Roanoke, Va.

Sept. 30, 2012
Smuttynose Rockfest Half/Full Marathons
Hampton, N.H.


» Go to the Events Calendar

Video Spotlight

Central Florida PHun Walk & 5K

On Saturday, Sept. 1, more than 150 people gathered around Lake Hollingsworth in Florida to run/walk for a cure! The inaugural Central Florida PHun Walk & 5K, hosted by Joy Morgan and the Central Florida PH Support Group, raised more than $8,000 for PH research and patient and family serving programs. Check out this video of event highlights, compiled by Dr. Ernesto Uy, a primary physician in Florida. » View the video

Read this week's Generation Hope blog post "No More Rebound Dreams!"
Gain some peace of mind: A new way to keep your medical documents in order
Are you a federal employee? Support PHA
 
 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.