Dec. 11, 2013

       
 
PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President
    Colleen Brunetti

You and your Specialty Pharmacy... an Important New Tool for you

Guest post by Colleen Brunetti
Drum roll, please... after years of hard work, the Pulmonary Hypertension Association and Caring Voice Coalition are rolling out something that will address a challenge that has been at the forefront of patient concerns for far too long. Introducing: The Specialty Pharmacy Feedback Form. » Read more

Let Your Voice Be Heard
    PH Patient and Caregiver

PH Caregivers: Let Us Know Your Opinions!

Our 2013 PHA Caregivers Survey is still open, and we want to hear from caregivers of adult PH patients! This 10- to 15-minute survey lets you tell us how we are doing and what caregiver resources you would like to see from PHA. Your input will allow us to better understand and support you as a caregiver. » Take the survey

Advocacy at Work
    U.S. Capitol

PH Bill Has New Congressional Support Thanks to PHers' Outreach

The Pulmonary Hypertension Research and Diagnosis Act (H. 2073/ S. 1453) has six new co-sponsors thanks to the advocacy efforts of several PHers who attended PHA’s Congressional Luncheon in November. » Learn more

E-Learning for Patients & Caregivers
    PHA Classroom

New e-Learning Guide on Nutrition and Exercise

Visit PHA Classroom to check out our new e-Learning Guide on Nutrition and Exercise with PH, providing tips, dos and don’ts, and all the how-to information for staying in shape with PH. E-learning guides combine recorded presentations and other resources into one convenient reference for the community. » Learn more

Education for Medical Professionals
    PHA Online University

Two New Courses on PHA Online University

PHA Online University recently released two courses for medical professional continuing education: Pulmonary Arterial Hypertension in Systemic Lupus Erythematosus, authored by Atiya Dhala, MD, and Portopulmonary Hypertension: Diagnosis and Treatment, authored by Michael Krowka, MD, and Rodrigo Cartin-Ceba, MD. » Visit PHA Online University to see all of our educational offerings

Give Back
    Giving the gift of hope

Make a Gift to PHA and See It Double!

PHA’s programs and services are funded by the generosity of community members like you. View PHA's Catalog of Hope to see examples of the invaluable resources your gift will support. Right now, thanks to a matching gift challenge from Actelion Pharmaceuticals, the first $25,000 in donations will be doubled – so each donation has twice the impact! » Donate today

PH News Headlines
   

Research & Treatment News
» New Mitochondrial Research Offers Hope to Those Suffering Serious Disease

» Research Group a Step Closer to Finding Treatment for PAH

Updates From PHers Around the World
» Woman Raising Awareness About Rare Disease

» Pulmonary Hypertension: What Moms Need to Know Now

» Restaurant Returns as a Valued Sponsor for The Woodland CrawPHish Festival

» More News

Connect
with PHA

 

Telephone Support

Parents
Dec. 16, 2013
11 p.m. ET/8 p.m. PT

Dec. 18, 2013
8 p.m. ET/5 p.m. PT

Caregivers
Dec. 18, 2013
1:30 p.m. ET/10:30 a.m. PT

Patients
Dec. 19, 2013
8 p.m. ET/5 p.m. PT

Upcoming Events

Jan. 11, 2014
Race of Our Lives Spin Event - "Java & Jam"
Northbrook, Ill.

» Go to the Events Calendar

Celebrate our Awareness Month successes! Read stories and share yours.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.