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Guest post by Colleen BrunettiDrum roll, please... after years of hard work, the Pulmonary Hypertension Association and Caring Voice Coalition are rolling out something that will address a challenge that has been at the forefront of patient concerns for far too long. Introducing: The Specialty Pharmacy Feedback Form. » Read more
Our 2013 PHA Caregivers Survey is still open, and we want to hear from caregivers of adult PH patients! This 10- to 15-minute survey lets you tell us how we are doing and what caregiver resources you would like to see from PHA. Your input will allow us to better understand and support you as a caregiver. » Take the survey
The Pulmonary Hypertension Research and Diagnosis Act (H. 2073/ S. 1453) has six new co-sponsors thanks to the advocacy efforts of several PHers who attended PHA’s Congressional Luncheon in November. » Learn more
Visit PHA Classroom to check out our new e-Learning Guide on Nutrition and Exercise with PH, providing tips, dos and don’ts, and all the how-to information for staying in shape with PH. E-learning guides combine recorded presentations and other resources into one convenient reference for the community. » Learn more
PHA Online University recently released two courses for medical professional continuing education: Pulmonary Arterial Hypertension in Systemic Lupus Erythematosus, authored by Atiya Dhala, MD, and Portopulmonary Hypertension: Diagnosis and Treatment, authored by Michael Krowka, MD, and Rodrigo Cartin-Ceba, MD. » Visit PHA Online University to see all of our educational offerings
PHA’s programs and services are funded by the generosity of community members like you. View PHA's Catalog of Hope to see examples of the invaluable resources your gift will support. Right now, thanks to a matching gift challenge from Actelion Pharmaceuticals, the first $25,000 in donations will be doubled – so each donation has twice the impact! » Donate today
Research & Treatment News» New Mitochondrial Research Offers Hope to Those Suffering Serious Disease
» Research Group a Step Closer to Finding Treatment for PAH
Updates From PHers Around the World» Woman Raising Awareness About Rare Disease
» Pulmonary Hypertension: What Moms Need to Know Now
» Restaurant Returns as a Valued Sponsor for The Woodland CrawPHish Festival
» More News
ParentsDec. 16, 201311 p.m. ET/8 p.m. PT
Dec. 18, 20138 p.m. ET/5 p.m. PT
CaregiversDec. 18, 20131:30 p.m. ET/10:30 a.m. PT
PatientsDec. 19, 20138 p.m. ET/5 p.m. PT
Jan. 11, 2014Race of Our Lives Spin Event - "Java & Jam"Northbrook, Ill.
» Go to the Events Calendar
Need more information? Contact PHANews@PHAssociation.orgPulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910Office: 301-565-3004 | Fax: 301-565-3994
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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.