Feb. 20, 2013

       
 
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Colleen Brunetti

Colleen, PH Specialty Pharmacies and You...

Guest blog post by Colleen Brunetti
Today I am thrilled to bring to the PH community a new initiative that, for me, has been several years in the making. But first, here’s how we got to today… I have been diagnosed with PH for five years, and like many of you, quickly had to learn to navigate a very complex healthcare system, including the delivery and management of medications that can only be procured through a specialty pharmacy. » Read more

What's In This Issue
   

» Spotlight On... Support NIH Research
» Get Smart
» Living Better with PH
» PH Community Scoop

» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...
    Support NIH Research

NIH Research Finds New Clue to Cause of PH

Leaders in pulmonary hypertension research produced one of the top research findings in 2012 at The National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). » Read more and take action!

Get Smart
    State of PHA

State of PHA: An Annual Update from Our President Rino Aldrighetti

Friday, Feb. 22, 2 p.m. ET/11 a.m. PT
At PHA, each year brings new developments and this past year was no exception: we continued our progress in the fight against PH through research, education, advocacy and awareness. In this webinar, PHA’s President, Rino Aldrighetti, will discuss the current state of PHA and the growth of the PH community. » Register now

Living Better with PH
    Upcoming Webinar: Courage to Take the Next Step

After the Diagnosis: Courage to Take the Next Step

Monday, Feb. 25, 4 p.m. ET/1 p.m. PT
Coping with a new pulmonary hypertension diagnosis may be challenging, but there are things you can do to help you feel your best. In this webinar, Janet Pinson, NP, will discuss tips for communicating effectively with your family and friends about your PH and ways to maintain good emotional health. » Register now

PH Community Scoop
    Arm Wrestling for PHA

Bring on the Muscle

The Minnesota Arm Wrestling League for Ladies tested their might in an arm wrestling brawl that raised funds for PHA. Competitors like "Honey Voodoo" and "Helga Hammerfist" battled it out to see whose biceps were tops before a lively crowd of more than 150 people. » Read more

Medical Community Bulletin
    PHA Online University

Earn Credits on New Respiratory Therapy Courses

New courses on respiratory therapy are now available on PHA Online University. Healthcare professionals can earn up to 6.0 hours of Continuing Respiratory Care Education (CRCE). Courses include:

View these offerings and more at: www.PHAOnlineUniv.org

Also of Interest
    Raise Your Hand for Rare Disease Day

1 Click, $1 to Rare Disease Research

Feb. 28 is Rare Disease Day. Spreading the word about the importance of rare disease research and treatment is a great way to raise awareness about PH while doing our part for a larger cause. The "Raise Your Hand" Campaign on the Rare Disease Day website includes an opportunity to raise money for rare disease research with just one click. » Raise your hand for rare disease research

PH News Headlines
   

Research and Treatment News
» Childhood Cancer Survivors Who Received Chest Irradiation at Risk for Pulmonary Hypertension in Middle Age

Updates from PHers Around the World
» Children’s Healthcare of Atlanta Treats Children with Pulmonary Hypertension

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Telephone Support

Parents
Feb. 21, 2013
8:30 p.m. ET/5:30 p.m. PT

Patients
Feb. 28, 2013
8 p.m. ET/5 p.m. PT

Caregivers
March 20, 2013
1:30 p.m. ET/10:30 a.m. PT

Generation Hope Blog "I Am What I Am Because of PH"
Make a gift that keeps on giving: Become a Monthly Donor
You're not alone with PH: Learn how other patients and caregivers cope
 
 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.