Nov. 13, 2013

       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President
    Chloe Temtchine

The Awareness Month Marathon...

Last Thursday evening, I was at PHA’s first N.Y. Chapter Gala, which honored the memory of Dr. Robyn Barst. That was followed on Friday, speaking to the patient session at the always great Duke/University of North Carolina PH Symposium. On Saturday, I visited the windy north country of Rochester, Minn., for the Reach for the Stars Gala organized by Bonnie McGoon and her great team of volunteers. » Read more

Spotlight On... Race of Our Lives
    Race of Our Lives Unity Miles Event

Be Part of the Great Bike Race

Join others in the PH community by supporting Team PHenomenal Hope through the Race of Our Lives campaign. You can show your support by sponsoring a mile, planning a Unity Miles event, fundraising through a virtual page and more! Your participation will raise awareness for PH and also provide the funds necessary to support research and patient-serving programs. » Learn how to join the Race of Our Lives campaign

Resources for Patients & Families
    PHA Classroom

Check Out the New PHA Classroom e-Learning Guides

"Traveling with PH" is the first in a new series of e-learning guides combining recorded presentations and other resources into one convenient reference. “Traveling with PH,” includes a travel checklist, resources for traveling with oxygen, weather factors to take into consideration, webinar recordings, a patient story and links to financial, logistical and emergency assistance resources for travelers. » View the guide now

What Do You Think?
    PH Patient and Caregiver

PH Caregivers: Your Opinions Wanted

We are currently conducting a 10- to 15-minute survey for caregivers of adult PH patients. This is your opportunity to tell us how we are doing and what resources for caregivers you would like to see at PHA! With your input, PHA will be better able to understand and support you as caregivers. » Take the survey

Achievements in PH Awareness
    Awareness Month - Zebra Face

What Have You Been Up to for Awareness Month?

We’d love to hear about it! Send us your stories, news articles, proclamations, short anecdotes, photos, videos, etc., about your Awareness Month activities. We will be reporting to the entire community on November's activities, and we want to include yours. » Submit your stories and photos

PH News Headlines
   

Research & Treatment News
» Angina Drug May Work in Pulmonary Hypertension

» Discovery Sheds Light on How Changes in Lungs Can Hurt the Heart

» Adempas Proves Promising for PAH

» Pills Using Different Pathways Treat PAH

Updates From PHers Around the World
» Generation Hope Blog: Art & Coping: Relieving Stress Through Creativity

» PH Plus Blog: Improper Diagnosis: The Challenge of PVOD

» Spartanburg Woman Works to Raise Awareness of PH

» Award-Winning Singer and PH Patient Chloe Temtchine Sings "Be Brave" While Using Oxygen Tank at Event

» Pulmonary Arterial Hypertension Can Be Hard to Diagnose, But is Fatal if Left Untreated

» PH Awareness Month Featured in the Costco Connection

» November is Time to Learn More About PH

» More News

Connect
with PHA

 

Telephone Support

Parents
Nov. 13, 2013
7 p.m. ET/4 p.m. PT

Caregivers
Nov. 20, 2013
1:30 p.m. ET/10:30 a.m. PT

Patients
Nov. 21, 2013
8 p.m. ET/5 p.m. PT

Upcoming Events

Nov. 15, 2013
Fred Astaire Dance Studio's 2nd Annual Golf Tournament
Kingwood, Texas

Nov. 15, 2013
Hope, Stella & Spirits Trunk Show
La Grange, Ill.

Nov. 16, 2013
Puyallup Six-Minute Marathon – Unity Miles Event
Puyallup, Wash.

Nov. 19, 2013
PHA Classroom Webinar: Chronic Obstructive Pulmonary Disease and Pulmonary Hypertension
Online

» Go to the Events Calendar to see all of the November PH Awareness Month events

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.