Oct. 2, 2013

PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President
    Congressional Luncheon

Football, Pumpkins and PH Advocacy!

Here at PHA headquarters in Maryland, we get just as excited about fantasy football and pumpkin carving as the next person, but nothing says fall at PHA quite like the way we ramp up our face-to-face advocacy efforts. Last week, nearly 80 PH Professional Network members visited 60 senators from 30 states and asked them to co-sponsor the Pulmonary Hypertension Research and Diagnosis Act. » Read more

Keep Posted on Race of Our Lives
    Race of Our Lives Goes to PHPN Symposium 2013

Cue Sheet: Your Roadmap to Race of Our Lives

Stay up-to-date on the Race of Our Lives campaign by signing up for our campaign blog, Cue Sheet: Your Roadmap to Race of Our Lives. We will be posting breaking news, information about the team, ways to get involved and more. Check out our first blog post about the growing buzz about the race among professionals! » Read more

Generation Hope Blog
    Generation Hope Blog: Need A Pick-Me-Up

Need a Pick-Me-Up

By Kiara Tatum
I don’t know about you, but I have been having an extra hard time these last few weeks. And all of a sudden last week, it hit me that it was my good friend’s birthday. She died from PH last year in October. » Read more

Get the Survival Guide on Your Mobile Device!
    Pulmonary Hypertension: A Patient's Survival Guide

Newest Survival Guide Hits the Shelves: Now as an e-Book, Too!

The Fifth Edition, 2013 Revision of Pulmonary Hypertension: A Patient’s Survival Guide is now available for the first time as both a paperback and an e-book. It's easier to access the latest treatments, emergency information, lifestyle topics and more on your Kindle, iPad or other mobile device. » Find out what’s new and order your copy

Coping Through Creativity
    Get on Your Creative Side: Share a Photo of Your Creation

Show Us Your Creative Side

Show us how you grapple with PH through art or crafting. Whether it is by jewelry making, knitting, sculpting or painting a picture, art can be a delightful and engaging way to clear your mind of tension and express your feelings. » Share a photo of your creation

PH News Headlines

Research & Treatment News
» FDA Grants Two Orphan Drug Designations for Bayer's Riociguat

» Researchers Find Certain Drug Combination Releases Potent Vasodilator Adenosine Triphosphate from Red Blood Cells

Updates From PHers Around the World
» PH Plus Blog: Losing Weight While Dealing with PH – Tami’s Story

» Arlington, Mass., Family Holds Golf Tournament to Help Fight Incurable Disease

» Boy At Obama's Side During Affordable Care Act Signing Now in High School

» Jennings, La., Boy Lives with Rare Lung Disease

» Regent Square Resident Embarkng on Coast-to-Coast Cycling Journey

» More News

with PHA


Telephone Support

Oct. 16, 2013
1:30 p.m. ET/10:30 p.m. PT

Oct. 24, 2013
8 p.m. ET/5 p.m. PT

Parents Webinar: Pediatric PH 101
Oct. 30, 2013
8 p.m. ET/5 p.m. PT

Upcoming Events

Oct. 6, 2013
Baltimore Walk for Hope
Baltimore, Md.

Oct. 12, 2013
Color PHor a Cure
Jennings, La.

Oct. 12, 2013
7th Annual North Texas Zebra PHriends 5K and 1M PHun Walk
Coppell, Texas

Oct. 12, 2013
8th Annual PHA PHun Walk
Lindenhurst, N.Y.

Oct. 12, 2013
5th Annual Pulmonary Pints for PH
Baltimore, Md.

» Go to the Events Calendar

Video Spotlight

PH patient Eduardo Martinez meets Patriots star Tom Brady

Young PH patient Eduardo Martinez got the opportunity to spend the day with his idol, football star Tom Brady of the New England Patriots, thanks to the Make-A-Wish Foundation. » Watch the video

PHA Daily Beat: News for your Health and Heart. Always be in the know.

Need more information? Contact
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.