Oct. 30, 2013

       
 
PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President
    Awareness Booth 

Racing Toward... PH Awareness Month

Welcome to Pulmonary Hypertension Awareness Month! This November, the PH community is Racing Toward a Cure. In fact, PHers have been racing toward Awareness Month for weeks now, getting an early start on everything from special events to media coverage. As I write, November is still a few days off, but take a look at just a few of the things that are already underway. » Read more

New Treatment Options Approved
    pills

Eleventh PH Drug Approved, the Second This Month

The U.S. Food and Drug Administration (FDA) has approved the eleventh pulmonary arterial hypertension (PAH) treatment in the U.S., Actelion Pharmaceutical’s macitentan (commercially known as Opsumit®), an oral dual endothelin-receptor antagonist (ERA). The news came Oct. 18, just 10 days after the approval of riociguat (commercially known as Adempas®) for the treatment of PAH and some cases of chronic thromboembolic pulmonary hypertension (CTEPH). These two new drugs are the first in five years to be approved by the FDA for treating PH. » Read PHA's original coverage of the new drug

Fight Back... Online!
    Hands around globe

Participate in Awareness Month from Where You Sit Now

Celebrate PH Awareness Month with two exciting online events. On Nov. 1, we kick off Awareness Month with a global PH Online Awareness Day. On Nov. 12, you can participate in National Advocacy Day by phone or online, if you are not able to attend our Congressional Luncheon in Washington, D.C. (details below). Together, we are strong! » PH Online Awareness Day | National Advocacy Day

Get Involved in PH Awareness
    Congressional luncheon participants

Invite Congress to Lunch

Sitting down to lunch with someone is a great way to find out what’s on their mind. That makes PHA’s Congressional Luncheon a valuable opportunity to let your senators and representative know what matters to the PH community and secure their co-sponsorship of the Pulmonary Hypertension Research and Diagnosis Act. How do senators and representatives learn about the luncheon? You invite them! » Learn more

Support PHA in the Workplace
    Combined Federal Campaign (CFC)

Attention, Active Military, Federal and Postal Employees!

The Combined Federal Campaign (CFC) is the workplace giving program that allows you to support charities of your choice, including PHA. Eligible employees can designate PHA with CFC number 12097 to help fund vital research and provide patient support, educate medical professionals and raise awareness of PH. The CFC is also a great opportunity to urge your coworkers to give to PHA. Email us or call 301-565-3004 x756 for free fliers to display in your office. » Learn more

PH News Headlines
   

Research & Treatment News
» FDA Approves Opsumit to Treat Pulmonary Arterial Hypertension

» Pulmonary Hypertension in the Spotlight at CHEST

» Treatment Options Expand for PAH in Scleroderma

» Scoliosis Tied to HTN Risk in Adolescents

Updates From PHers Around the World
» Local Women Lobby for PH Awareness, Research

» Considering Transplant and on Oxygen, Singer-Songwriter with Rare Lung Disease Returns to Stage Nov. 7

» More News

Connect
with PHA

 

Telephone Support

Parents
Oct. 30, 2013
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Nov. 13, 2013
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Caregivers
Nov. 20, 2013
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Nov. 21, 2013
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Upcoming Events

Nov. 2, 2013
Sarah Smiles PHun-Raiser
Camillus, N.Y.

Nov. 7, 2013
O2 breathe Gala - New York City
New York, N.Y.

Nov. 8, 2013
5th Annual North Carolina Research Triangle Park PH Symposium
Durham, N.C.

Nov. 8, 2013
San Francisco PHA Chapter's Inaugural Bay Area Gala
Foster City, Calif.

Nov. 9, 2013
7th Biennial "Reach for the Stars" Rochester PHA Gala
Rochester, Minn.

Nov. 13, 2013
PHA Classroom Webinar: Surviving Survivor's Guilt
Online

» Go to the Events Calendar to see all of the November PH Awareness Month events

You are not alone with PH: Learn how other patients and caregivers cope

Need more information? Contact PHANews@PHAssociation.org
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.